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You might also recall that he is a proxy for @Penelope McMillan on the Cochrane Exercise Review led by @Hilda Bastian https://community.cochrane.org/organizational-info/people/central-executive-team/evidence-production-methods-directorate/stakeholder-engagement-high-profile-reviews-pilot-2

This study was mentioned at the IACFS/ME 2022 conference by Lauren Stiles of Dysautonomia International: I note from the abstract that this study was quite small (12 women with POTS), and they weren't a random sample of POTS patients. They were selected for the study because they reported...

This study was mentioned at the IACFS/ME 2022 conference by Lauren Stiles: IACFSME 2022 Virtual Medical Conference: Day 4 Presentations: 30 July (9 am to 3.30 pm EDT)

Notes - Part 2 University of Toledo - Platelet storage pool deficiency 34 people with POTS. 85% were found to have a platelet storage pool deficiency (immune mediated). Also IL-1B, IL-21, TNFa, INFy and CD30 were elevated [interesting about the IL-21 given the recent Cox study that found the...

Notes - Part 1 Lauren said there is a lot of overlap between ME/CFS and POTS, and sometimes she thinks they are the same things, but just different flavours. She also noted the underfunding of research is something that the two conditions share: the annual NIH funding for POTS research is only...

Sorry I missed this thread earlier. We are tagging threads that address the question (because it is a common one in advocacy), including by giving rates of ME/CFS criteria compliance/diagnosis in Long Covid cases, with the "LC=ME/CFS' tag. If you click on that tag on the top left of this...

Casandra Isabel Montoro Aguilar Good grief, this woman is certainly prolific. Someone, stop giving her patients to play with. 2022 papers so far (yes, 12, and that's not counting this latest one) Algometry for the assessment of central sensitisation to pain in fibromyalgia patients: a...

New paper out An Integrative Neuropsychological Approach to Chronic Pain, Emotions and Clinical Symptoms, 2022, Montoro and Galvez-Sánchez Usual BPS stuff, assuming that measures of anxiety and depression and the like indicate fixable emotional problems that are causing illness, in this case...

Straightforward case of mis-attribution of causality. 115 women with fibromyalgia, recruited from the Fibromyalgia Association of Jaén (AFIXA; Spain) (I've said it before, where is the responsibility in patient organisations that encourage their members to put themselves in harm's way...

I agree with the points made against a new journal above. I think there's an argument for less ME/CFS journals rather than more. The IACFS/ME journal is, I think, doing more harm than good, publishing poor quality papers that can't readily be accepted elsewhere, including a paper by Crawley...

Experts warn teachers and parents to look out for long Covid in children RNZ news item

Leigh Jerome is a clinical psychologist. She talked a lot of good sense, nothing regular members of this forum don't know, but still good to hear them being said by a clinical psychologist who seems to make the effort to educate her fellow medical professionals. She said things that most of us...

There were technological difficulties that delayed this presentation and were present throughout which created confusion. I found the format of the slides with large white letters on a black background, with red headings, difficult to look at , and I don't usually have visual sensitivity. Dr...

(Note: technical difficulties resulted in the order of these talks being changed from that shown in the programme) The conference had the capacity to poll the audience. Dr Bateman asked "Can early intervention change the course of post-viral syndrome?" 52% of the audience agreed that it could...

Bacteria are hosts to viral parasites, phages. Where bacteria are scarce and difficult to find, the presence of phages can provide a way to determine whether the host bacteria are present. Chronic borreliosis can have an onset and ongoing symptoms that overlap clinically with ME/CFS. Dr De...

Dr Daiki Takewaki presented; he's part of the Yamamura group. [A lot of ground was covered, but very quickly.] The microbiome affects all of the systems in the body implicated in ME/CFS. [Interesting to see it suggested that allergies are part of the ME/CFS picture.] 30-90% of people with...

Can someone ask where the study is registered e.g. on Clinical Trials? I think any researcher advertising to recruit for a trial should include a link to the study's entry in a common trial registry.

I get a bit suspicious when a whole lot of things are found to differ between males and females with ME/CFS. Such differences seem a bit unlikely, given that there's no reason to think the phenotype of the disease is very different in males and females. I wonder if the blood analysis of the...

Dr Systrom presented a lot of information in his talk, and probably his recent papers are the best way to approach a lot of it rather than my hasty notes of my incomplete understanding of his verbal summaries. That said, let's see how we gp. Pathophysiology of Exertion Intolerance People...

The 'exercise tolerance' of the abstract could mean anything, and the natural tendency is to assume it means more than it actually did in this study. It's a bit like the measures of various personality traits that give the impression of a credible scientific tool, but actually are just 5...