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Yes, thanks to those trying to engage on this, and for sharing the document @Grigor. Knoop's responses to some questions start on page 8 - I too find them incredible. I thought this response from Knoop about the actimetry measurement was interesting:

I really should not have gone down this rabbit hole. Stool consistency That's important because pretty much all of the other measures of improvement supposedly resulting from the CBT were subjective. Microbiome I've run out of steam, but it looks to me as though, after the CBT, the...

Metabolomics at baseline God knows how many metabolites were measured. 55 are recorded in Table S3 as being different among those who got better ("responders") and those who didn't ("non-responders") over the trial, but none of the comparisons survived adjustment for multiple comparisons...

84 people all got CBT. Over the trial period, some of these people's IBS symptoms improved. The study found some things were associated with improvement over the trial period - fecal serotonin levels and levels of certain high level groups of micro-organisms in the gut. Those findings are...

I've just re-watched Adam's video and it holds up well I think. I think it does work as something to show newly diagnosed people. We do need such people to understand that it's a serious illness and that there is no cure or even proven treatments. There is a segment explaining that maybe 25%...

That is a pretty good video. But it does have problems - it states things about the pathology of ME and the treatment of ME that have not been proven, with some of the things that are said almost certainly being wrong. It could lead newly diagnosed patients to go down time and energy wasting...

This is the paper the article is based on: Placebos in clinical care: a suggestion beyond the evidence Christopher G Maher, Adrian C Traeger, Christina Abdel Shaheed and Mary O'Keeffe Med J Aust 2021; 215 (6): 252-253.e1. || doi: 10.5694/mja2.51230 Published online: 20 September 2021 Free...

To me, (and of course I have no training in mental illness), that sounds like a description of how someone is behaving rather than a diagnosis of a discrete disease. The description might fit a whole range of causes, each with different treatments. For example, a cause could be chemical...

We have a thread discussing l-carnitine L-carnitine, tryptophane and d-ribose']here[/URL]. Also clicking on the l-carnitine tag (at the top left of this thread) will list other threads tagged with l-carnitine. This paper from two Iranian authors is speculative; it does not report any new...

:rofl: Not only are the NHS website multimedia team giving unevidenced and harmful advice about medical conditions, they are bad at grammar. I wonder if the same person wrote the reply I received back in 2018:

There's some discussion of Luis Nacul on this thread, in his presentation when he took up that Canadian clinic position. Dr Nacul speaking tomorrow (Saturday), livestreamed There were indications in that presentation that he might not provide the leadership on evidence-based care that we were...

A win!! A tiny tiny win, but still. It's due to the NICE Guidelines @adambeyoncelowe @Keela Too @saranbonser In the 'accept this solution' email, I have suggested that the NHS work with Physios for ME if they want to create content about exercise for people with ME/CFS. @PhysiosforME

The ANZMES website seems to be down. I get a message saying 'Bad gateway'. Edit - it's back up.

So the process is you take presumed pathogenic immunoglobulins from the patients and inject them into the rodents, hope that the immunoglobulins are affecting a pathway common to humans and rats, and observe the rats for signs of the symptoms the humans complain of. They make some very strong...

I haven't got past the introduction, but it's interesting to see this, and see where some of the authors are based: Andreas Goebel a David Andersson b Suzsanna Helyes c DavidClark d Debra Dulake e Camilla Svensson f a Pain Research Institute, Institute for Life Course and Medical Sciences...

Yes, thanks to Sasha and Simon and everyone who contributed. I hope we can get a lot of people indicating support for the selection (by voting in the poll), so that Getty Images will be convinced this is something the ME/CFS community wants.

After the circular thinking, there's this leap in logic. I didn't go back to check, but I don't think multimodal rehabilitation is mentioned until this very last line of the paper (and in the abstract). The results of this study suggest nothing at all about the need for multimodal...

The moderation team has decided that it's best to keep the Dialogues videos together on one thread. We will make a forum banner to promote the latest video, and we will add links to the video from suitable resources threads.

If Pretorius and her team do careful lab work, and I have no reason to think that they don't, then it's possible that the differences in in vitro clots they are reporting are real. Surely they would have thought about whether variations in the process (e.g. time after blood collection) are...

Nationwide epidemiological characteristics of chronic fatigue syndrome in South Korea, Lim et al. 2021 A review of national insurance data, with the uncertainties around diagnosis that that implies. The first and last authors, Eun-Jim Lim and Chang-Gue Son have published a few papers on ME/CFS...