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@Esther12 I see your point. But I find much of what Crawley says dangerously close to the line of hate speech against a disabled group. Also, how can YouTube/Google get to the truth unless we tell them?

Would we have a case claiming "Hateful or abusive content" against patients? Skip TEDx and complain straight to YouTube/Google.

Agreed. However, doctors need to be trained on how to diagnose ME/CFS for it to do any good. These guidelines do little for the undiagnosed ME/CFS patient misdiagnosed with idiopathic fatigue and ADD. Not to mention that throwing stimulants at such a patient might cause side effects that make...

Is it always? The SEID (Institute of Medicine/National Academy of Medicine) diagnostic criteria emphasize functional impairment over fatigue.

Here's what the CDC currently says (spacing added for readability): My personal experience with prescription Ritalin/Adderall/Vyvanse supports this: stimulants provide a short term boost in functioning, while worsening the push/crash cycle. Vyvanse has the fewest side effects for me, and I...

The Synergy Trial at Stanford "evaluated the safety and efficacy of methylphenidate (generic Ritalin), combined with a mitochondrial support nutrient formula over 12 weeks". "The difference between the two groups did not achieve statistical significance"...

Biodiversity? Gut microbiome diversity?

Excellent news. Keep us posted. :thumbup:

Just to clarify, this is a brand new product which only contains L. Sakei and not the other strain. This isn't the sausage product. I wouldn't recommend the sausage product for sinus issues. But do your own research first.

So far I've noticed a considerable improvement in my sinus congestion, and can sleep at night without sinus rinses for the first time in a decade. However, a number of products have been beneficial short term (zinc comes to mind), only to stop working after a couple weeks. I need something long...

I hope the antibiotics work out for you. But if they don't, I wanted to mention there's a new sinus probiotic available, called Nasobiotex L. Sakei Probiotic Powder. It might be worth asking your ENT doctor about...

This thread reminded me of an article I read recently, where Elizabeth Unger MD, PhD, chief of the chronic viral diseases branch of the CDC was talking about ME/CFS. At the end of the quotes below she speaks of "sickness behavior"...

I noticed Amazon has a new product, "Pure L. Sakei Probiotic Powder 10 Billion+ CFU/gm" by Apothex Nasobiotex. Has anyone tried it? I've just placed an order, and will be trying it out to see if it helps my chronic sinusitis better than daily sinus rinses and nasal sprays (which do help...

I can't help but be reminded of The Synergy Trial at Stanford. The Synergy Trial "evaluated the safety and efficacy of methylphenidate (generic Ritalin), combined with a mitochondrial support nutrient formula over 12 weeks". "The difference between the two groups did not achieve statistical...

http://www.bbc.co.uk/editorialguidelines/guidelines/accountability Section 19: Accountability Principles 19.1.1 The BBC is accountable to its audiences. Their continuing trust in the BBC is a crucial part of our relationship with them. We will act in good faith by dealing fairly and openly...

I found it interesting that Moreau said he thinks ME/CFS will be broken down into subgroups in just 2-3 years.

My vision fluctuates frustratingly from day to day, even hour to hour. Only resting with my eyes closed seems to help a bit. All my eye tests (including pressure) are normal. Here are some related links, including Phoenix Rising threads, that might be helpful (not recommendations). Jason et...

I always mention I have ME/CFS, and based on their response, either keep them or find another. They don't have to be knowledgable, but if they aren't at least open to the idea that ME/CFS is an actual medical condition and willing to learn, there really is no point.

Ask for neurocognitive testing. Ask to rule out similar disorders such as Multiple Sclerosis, Myasthenia Gravis, Lupus, Behcet's Disease, Ehlers-Danlos syndrome, sleep apnea, narcolepsy, etc.

Great point. I wish the revised CDC website described the disability and functional impairment better. Then perhaps the media would pick this up as well. :cool: