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  1. Sly Saint

    Tymes Trust - No reported harassment of staff at Bristol University

    Yes, and she seems to really believe it. Not helped by the fact that she has been supported by AYME and AfME. In her inaugural speech (Feb 24th 2017) https://www.dropbox.com/s/lc9kmqbxcsuiilg/Esther Crawley inaguaral compressed.mp3?dl=0 she says she Gets given flowers from AYME on behalf of...
  2. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Exeter is where she did her talk at the 'Day with the MUPPETS' conference (http://www.meassociation.org.uk/2017/05/paediatricians-apologise-but-they-dont-identify-the-muppet-who-came-up-with-title-for-todays-conference-18-may-2017/), so she will be 'among friends' and no doubt get a standing...
  3. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    I would think for mood disorders, singing the blues might be more appropriate.........
  4. Sly Saint

    Chronic Urinary Tract Infection or Interstitial Cystitis?

    "Diagnosing interstitial cystitis (IC) can be challenging. The IC diagnosis process requires healthcare providers to rule out other conditions prior to making the clinical judgment that you have IC. Common conditions that must be first ruled out include urinary tract infections and chronic...
  5. Sly Saint

    Allodynia - Painful skin, general sensitivity

    Am posting this because it is common among people with Fibromyalgia, ME, CFS and those who suffer from migraines but not everyone knows it is a diagnosable condition. " Allodynia is pain, generally on the skin, caused by something that wouldn't normally cause pain. This pain type is associated...
  6. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    " Every year the Mood Disorders Centre presents the Think-Tank seminar series, inviting external speakers from around the world to present on a variety of topics relating to mood and mental health. See the Previous external speakers section for a sample list of topics discussed. The Think-Tank...
  7. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Professor Esther Crawley (University of Bristol) - Title TBC Mood Disorders Centre Think Tank seminar series A Mood Disorders Centre seminar Date 17 November 2017 Time 12:00 to 13:00 Place Mood Disorders Centre http://www.exeter.ac.uk/news/events/details/index.php?event=7482 be...
  8. Sly Saint

    Osteoporosis (bone loss)

    "Drugs used to treat weak bones in elderly patients suffering from osteoporosis may actually make them weaker, research suggests. Scientists at Imperial College London examined the bone structure of hip-fracture patients who had been treated with bisphosphonates. They found evidence the drugs...
  9. Sly Saint

    Selfhacked: 'Dr. Jarred Younger: Cutting Edge Research on CFS, Neuroinflammation, Pain, and Fatigue'

    On the site is a podcast of the interview direct link here:
  10. Sly Saint

    NL Unrest Film Screening + Q&A with David Tuller, Charles Shepherd and Dr. Van Campen

    The recent Esther Crawley talk #scidata17 was also thro' Eventbrite (UK version). Shame they didn't have this one on the same day/same location...........EC and David Tuller:emoji_popcorn:
  11. Sly Saint

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    The Open Hands The person opens arms, such that palms and fingers are visible. Openness and Honesty The person wants to show that he/she can be trusted. “Look, I have nothing to hide.” Use this gesture in presentations and sales. she's definitely worked on this new presentation mode.
  12. Sly Saint

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I've dug out this statement from MERUK from Sept re accusations of harassment of researchers, just in case anyone wants it as ammo.
  13. Sly Saint

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Classic preacher pose........I was waiting for the 'I have a dream' moment (no disrespect to MLK intended)........... The other 'shock revelation' after she'd told everyone who the picture of the little girl in bed was, how long she'd been ill etc was to tell them that actually it was all a...
  14. Sly Saint

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    it's a film recorded on a phone. The sound is a bit dodgy at first and a bit in the middle and the pics not wonderful but well done whoever recorded it. My god, is Esther going for an oscar or what. She's definitely had a bit of coaching from Wessely.......all that stuff about her grandfather...
  15. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    "The Countess of Mar Deputy Chairman of Committees, Deputy Speaker (Lords) To ask Her Majesty's Government, further to the Written Answers of Lord O’Shaughnessy on 19 July 2017 (HL684 and HL685), and in the light of two recent studies on chronic fatigue syndrome/myalgic encephalomyelitis...
  16. Sly Saint

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    It's not law yet but if they add disability to the list of hate speech, would the M.E Community have a case against the likes of SW and EC ? "In a survey of just over 2,000 British adults, 65% thought it should be against the law to use threatening words or behaviour with the intention of...
  17. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Moderator note - three threads on questions in the UK House of Lords and House of Commons have been merged at the request of the original posters We have subsequently broadened the scope of the thread to include mention of members of parliament and Lords relevant to ME/CFS "The Countess of...
  18. Sly Saint

    You and Yours radio prog describes how ME patients are denied benefits

    Listened to it. They repeated a bit of the interview with the man with ME (who secretly recorded his assessment), and then spoke to a mental health nurse who worked as an assessor who told them about the various tricks of the trade they were told to use to speed up assessments, ie getting people...
  19. Sly Saint

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    I get some quite violent muscle spasms....usually at night when I'm in bed. It usually wakes me up, or should I say I wake me up........ (please no witty Wham references:emoji_zzz:)
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