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  1. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    I think Peter White was due to speak at this (?) But they seem to have had Per Fink..... Per Fink Head of Research and Chief Physician, The Research Clinic for Functional Disorders, Aarhus University Hospital In 1999, Per Fink started The Research Clinic for Functional Disorders at Aarhus...
  2. Sly Saint

    Journalist seeks people harmed by / coerced into GET, children harmed by GET or parents accused of abuse

    Interview with Nigel Speight from 2014 where he talks about some of the cases he was involved in RE PRS, Munchausen by proxy, etc (16 minutes long, Dutch subtitles)
  3. Sly Saint

    Huffington Post Germany article on Ron Davis/OMF research

    By Melanie Schickedanz "In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...
  4. Sly Saint

    Complex Chronic Disease Program (CCDP) Patient Engagement Findings

    see also this thread: https://www.s4me.info/index.php?posts/16619/
  5. Sly Saint

    UK ME/CFS Biobank hosting Unrest screening with livestreamed Q&A after, Thurs 2nd Nov

    This link still works and takes you straight to the discussion. https://panopto.lshtm.ac.uk/Panopto/Pages/Viewer.aspx?id=3f756fa1-4190-454f-83a5-71a1063508bd very interesting QandA. I didn't realise that the Biobank don't have samples from children. Another reason why Crawley is so keen on the...
  6. Sly Saint

    Tymes Trust - No reported harassment of staff at Bristol University

    From Bristol Uni website, pdf of their statements re CFS/ME Research: http://www.bristol.ac.uk/media-library/sites/red/documents/research-governance/University%20of%20Bristol%20statements%20about%20CFS_ME%20research.pdf
  7. Sly Saint

    Action for ME AGM (UK) is live streaming now

    It is supposed to be a microscope (it's in the emojis) but I guess in some contexts a cannon would be OK such as blowing PACE to bits.
  8. Sly Saint

    Tymes Trust - No reported harassment of staff at Bristol University

    The use of vexatious FOI is in the ICO documentation: " You can refuse an entire request under the following circumstances: It would cost too much or take too much staff time to deal with the request. The request is vexatious. The request repeats a previous request from the same person."...
  9. Sly Saint

    Action for ME AGM (UK) is live streaming now

    "Unlike most charities and many ME charities, AFME does not allow its paying members to become legal members of the charity and therefore have no input into the direction of the charity and voting rights. It only recognises its own trustees as members." http://me-pedia.org/wiki/Action_for_ME
  10. Sly Saint

    Action for ME AGM (UK) is live streaming now

    not my comment; I just copied and pasted a bit from their report.........as their finances were being discussed earlier in this thread. The biscuit was not intended to mean anything.
  11. Sly Saint

    Health Secretary Jeremy Hunt taken down by Ralf Little

    "Health Secretary Jeremy Hunt has been brutally taken down by Ralf Small in 42 tweets – after he challenged the actor to a ‘double-dare’. Small accused Hunt of lying on Twitter about claims he masterminded the ‘largest expansion of mental health provision in Europe’ on the BBC’s Andrew Marr...
  12. Sly Saint

    Action for ME AGM (UK) is live streaming now

    their report on the AGM: https://www.actionforme.org.uk/news/agm,-childrens-services-and-unrest-film-at-our-conference-today/ "Treasurer to the Board of Trustees, Philip Marsden, explained that Action for M.E. has achieved a sound underlying financial performance for the third year running...
  13. Sly Saint

    Daily Mail/AfME: What can you do if you have chronic fatigue?

    I think a possible way of spotting these repeats is the : "0 Comments" and "We are no longer accepting comments on this article"
  14. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    I would have thought repeatedly saying 'Stop' while holding out her hand and jumping onto a piece of paper would be more her thing....?
  15. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Wonder what the SMC and BPS gang will come up with to counteract..........they always seem to find something. Hope someone had a phone or something to record it all.......... ooooh the suspense is killing me:nailbiting:
  16. Sly Saint

    The UK ME/CFS Biobank Christmas 2017 Appeal

    http://cureme.lshtm.ac.uk/christmas-2017-fundraising-appeal/ " Any funds donated will be split between these aims, with collaborating research projects to be chosen by the UKMEB Guardian Board. — £10,000 would enable a further blood sample and data release, — £25,000 would enable the release of...
  17. Sly Saint

    Action for ME raises concerns in Scottish Parliament

    I have found the one from 2010 (?) just reading it now and so far it seems better than what we have in England http://www.scot.nhs.uk//wp-content/uploads/2015/06/GoodPracticeStatement.pdf eta: the part on GET Graded exercise therapy (GET) is intended to redress decline in physical fitness due...
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