I think Peter White was due to speak at this (?)
But they seem to have had Per Fink.....
Per Fink
Head of Research and Chief Physician, The Research Clinic for Functional Disorders, Aarhus University Hospital
In 1999, Per Fink started The Research Clinic for Functional Disorders at Aarhus...
Interview with Nigel Speight from 2014 where he talks about some of the cases he was involved in RE PRS, Munchausen by proxy, etc (16 minutes long, Dutch subtitles)
By Melanie Schickedanz
"In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...
This link still works and takes you straight to the discussion.
https://panopto.lshtm.ac.uk/Panopto/Pages/Viewer.aspx?id=3f756fa1-4190-454f-83a5-71a1063508bd
very interesting QandA. I didn't realise that the Biobank don't have samples from children. Another reason why Crawley is so keen on the...
From Bristol Uni website, pdf of their statements re CFS/ME Research:
http://www.bristol.ac.uk/media-library/sites/red/documents/research-governance/University%20of%20Bristol%20statements%20about%20CFS_ME%20research.pdf
The use of vexatious FOI is in the ICO documentation:
"
You can refuse an entire request under the following circumstances:
It would cost too much or take too much staff time to deal with the request.
The request is vexatious.
The request repeats a previous request from the same person."...
"Unlike most charities and many ME charities, AFME does not allow its paying members to become legal members of the charity and therefore have no input into the direction of the charity and voting rights. It only recognises its own trustees as members."
http://me-pedia.org/wiki/Action_for_ME
not my comment; I just copied and pasted a bit from their report.........as their finances were being discussed earlier in this thread.
The biscuit was not intended to mean anything.
"Health Secretary Jeremy Hunt has been brutally taken down by Ralf Small in 42 tweets – after he challenged the actor to a ‘double-dare’.
Small accused Hunt of lying on Twitter about claims he masterminded the ‘largest expansion of mental health provision in Europe’ on the BBC’s Andrew Marr...
their report on the AGM:
https://www.actionforme.org.uk/news/agm,-childrens-services-and-unrest-film-at-our-conference-today/
"Treasurer to the Board of Trustees, Philip Marsden, explained that Action for M.E. has achieved a sound underlying financial performance for the third year running...
Wonder what the SMC and BPS gang will come up with to counteract..........they always seem to find something.
Hope someone had a phone or something to record it all..........
ooooh the suspense is killing me:nailbiting:
http://cureme.lshtm.ac.uk/christmas-2017-fundraising-appeal/
"
Any funds donated will be split between these aims, with collaborating research projects to be chosen by the UKMEB Guardian Board.
— £10,000 would enable a further blood sample and data release,
— £25,000 would enable the release of...
I have found the one from 2010 (?)
just reading it now and so far it seems better than what we have in England
http://www.scot.nhs.uk//wp-content/uploads/2015/06/GoodPracticeStatement.pdf
eta: the part on GET
Graded exercise therapy (GET) is intended to redress decline in physical fitness due...
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