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    Michael Sharpe skewered by @JohntheJack on Twitter

    Especially this
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    Presentation: 'A critical approach to Medically Unexplained Symptoms’

    Good Luck - debate would be a good thing.
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    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    I' m pretty sure worst culprit for my aunt was B12 ( and i' m also sure it would make a big difference if she could take it - the double bind again ) If she had had gut issues she might have tried via patches / injections , but won't budge.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    We may be at the Blackadder stage - a pencil up each nostril, a hankie on head and saying " squibble" multiple times ....
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Either he has a cunning plan ...or he is heading for a mid life crisis
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Precisely this.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Perhaps the backchannels no longer have the desired effects?
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    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    @JaimeS - is the blurred vision happening with any B vitamins or specific ones. My aunt went blind for 20 mins when she tried B vitamins and has not supplemented with them since
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    David Tuller: Trial By Error: An Open Letter to The Lancet, Two Years On

    Nicely timed. It can be referred to during the debate at Westminster on Thursday .
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    Video: The PACE trial: a short explanation, Graham McPhee

    I thought this was excellent. The main issue stripped bare and explained with simple clarity. Kudos to you @Graham - you must have been a great teacher. I' m looking forward to the next installment.
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    BABCP Annual Conference and Workshops

    My son' s girlfriend qualifies as a nurse this year, specialising in mental health. Her opinion of CBT is not high - overhyped, overused , varying in quality and patient blaming if poor engagement. Her concern is that there is not much else in NHS box of tricks to offer ...
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    Video: The PACE trial: a short explanation, Graham McPhee

    Has Carol Monaghan got a copy ?
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    Mapping illness

    Sorry tweet
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    Mapping illness

    I saw this on Twitter and wondered - Given that ME may have environmental triggers has anyone mapped where people with ME lived when they started being ill ( i know that this will be difficult for gradual onset) My interest is piqued as most of the mums i know are either rural ( potential...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    There may be some whose insurance will not pay out unless they try it ...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Had we had " specialists" I am sure that my daughter would be even worse. For a child to be able to regulate activity is a hard thing - to increase it with the premise of recovering would be easy - it's something that would give you your life back, who wouldn't. If you are told pushing through...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Just need to find a husky drawn sled with a seat for my daughter! She might only last 10 mins but it would be the best 10 mins ...
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    Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

    Underwhelming
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    Michael Sharpe skewered by @JohntheJack on Twitter

    He is a member here you could DM him ?
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    Recognizing and Improving Care for ME/CFS, FM and ES/MCS (Canada)

    Prevalence rates interest me as the cfs figure seemed high. Given there may be environmental factors in causation and/ or perpetuation prevalence rates v location would be an interesting study.
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