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  1. Sly Saint

    PhD Studentship - Contested Conditions: An Exploration of Experience and Understanding May 2020

    https://www.jobs.ac.uk/job/CAC231/phd-studentship-contested-conditions-an-exploration-of-experience-and-understanding
  2. Sly Saint

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    showing another incorrect assumption that going down with ME/CFS is a gradual process for all people; I don't know what the statistics are but I thought that there were more pwME with acute onset than gradual onset(?) and I know I'm not the only one to be initially diagnosed with PVFS for the...
  3. Sly Saint

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    interesting that this is what they say for 'post-viral fatigue' and yet when it comes to 'Chronic fatigue' the increase is 20% a week. rings a bell....... "Professor Trudie Chalder is researching into what we can we learn from acceptance and commitment therapy in relation to COVID-19."...
  4. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Moving The Goalposts So That The Cheapest Talking Therapy Option Always Wins full post http://www.cbtwatch.com/moving-the-goalposts-so-that-the-cheapest-talking-therapy-option-always-wins/#comments
  5. Sly Saint

    Article: Open-access science funders announce price transparency rules for publishers- May 2020

    full article here https://www.sciencemag.org/news/2020/05/open-access-science-funders-announce-price-transparency-rules-publishers#
  6. Sly Saint

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    re cognitive tests, these might be of interest https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2682840/
  7. Sly Saint

    Hemodynamics During the 10-Minute NASA Lean Test: Evidence of Circulatory Decompensation in a Subset of ME/CFS Patients-Lee,Unutmaz,Bateman May 2020

    This preprint is under consideration at Journal of Translational Medicine. Preprints are preliminary reports that have not undergone peer review. They should not be considered conclusive, used to inform clinical practice, or referenced by the media as validated information...
  8. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    #MillionsMissing Virtual Choir sings "You've Got a Friend."
  9. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    CUREME Research Round-up: our work over the last year rest here https://cureme.lshtm.ac.uk/research-roundup-our-work-over-the-last-year/
  10. Sly Saint

    United Kingdom: Sussex & Kent ME/CFS Society News

    from 'new' list of support groups on MEA website: https://www.meassociation.org.uk/2009/09/sussex/ @Russell Fleming
  11. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    see also this thread https://www.s4me.info/threads/bristol-cfs-me-clinic-researching-patients-problems-with-chalder-fatigue-questionnaire.10683/#post-261267
  12. Sly Saint

    Bristol CFS/ME clinic researching patients' problems with Chalder Fatigue Questionnaire

    https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/chronic-fatigue-syndromeme-2
  13. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    For the IAG/Hilda Bastian https://www.s4me.info/docs/CFQ-Critique-S4me.pdf Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire Wilshire, C.E., McPhee, G., and the Science for ME CFQ working group eta: see also...
  14. Sly Saint

    Coronavirus - worldwide spread and control

    https://www.the-scientist.com/news-opinion/possible-biological-explanations-for-kids-escape-from-covid-19-67273
  15. Sly Saint

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think the 'motto' for LP and similar 'therapies' is 'fake it till you feel it'; see https://www.dailymail.co.uk/health/article-1356316/At-I-discovered-secret-Emilys-14-lost-years-Esther-Rantzen.html eta: although she 'recovered' with LP she apparently still has ME...
  16. Sly Saint

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Merged thread The Robert G. Fenley Writing Awards: News Releases – Silver goes to “Biomarker for Chronic Fatigue Syndrome Identified” By Hanae Armitage Stanford...
  17. Sly Saint

    Covid-19 related treatment and other scams

    It would appear that Phil Parker is now genuinely 'qualified' as a Dr, and as described in his recent article in the Sun newspaper 'a researcher at the London Metropolitan University'. This is his doctorate thesis from last year: http://repository.londonmet.ac.uk/5221/ (there is a link to a 393...
  18. Sly Saint

    Lightning Process study in Norway - Given Ethics Approval February 2022

    this tweet is from March so I don't know if it's been posted elsewhere on the forum anyone know what are the trials that he mentions?
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