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  1. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NYC Health COVID-19 Updates Dec 3 2020 https://www1.nyc.gov/assets/doh/downloads/pdf/covid/providers/covid-19-providers-dear-colleague-updates-12032020.pdf
  2. Sly Saint

    European Parliament questions

    P-005482/2020 Answer given by Ms Gabriel on behalf of the European Commission (4.12.2020) https://www.europarl.europa.eu/doceo/document/P-9-2020-005482-ASW_EN.pdf
  3. Sly Saint

    Workwell Foundation: fundraising

    https://workwellfoundation.wedid.it/campaigns/8320
  4. Sly Saint

    Event: Grand Rounds: Pathophysiology of Exercise Intolerance in Chronic Fatigue Syndrome Event Date: May 5th, 2020 David Systrom, MD

    A complete (preload) failure Paolo Maccallini https://paolomaccallini.com/2020/11/24/a-complete-preload-failure/
  5. Sly Saint

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    New Test for Chronic Fatigue Syndrome Could Help COVID-19 Patients https://www.verywellhealth.com/cfs-me-diagnostic-test-covid-19-5089344
  6. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread full article https://meassociation.org.uk/2020/11/manx-radio-turn-up-the-volume-for-specialist-me-cfs-service-on-the-island/
  7. Sly Saint

    UK - NICE guideline on Long Covid

    so this is likely to be around the deadline for submission for comments on the draft ME guideline. I'm not sure if this is a good or bad thing. Things that may arise in the LC guideline might have some bearing on the proposed contents of the ME guideline. I'm guessing some on the ME NICE...
  8. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Insurers must prepare for 'Long Covid' https://www.covermagazine.co.uk/news/4024359/insurers-prepare-%E2%80%98long-covid%E2%80%99
  9. Sly Saint

    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    Merged thread from MEA website " We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including...
  10. Sly Saint

    Effects of Neurological Disorders on Bone Health - Kelly et al 2020

    https://www.frontiersin.org/articles/10.3389/fpsyg.2020.612366/full
  11. Sly Saint

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    #MEAction Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion https://www.meaction.net/2020/11/30/goodbye-to-graded-exercise-therapy-but-concerns-about-physical-activity-programmes-community-discussion/
  12. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    British Thoracic Society PHOSP-COVID Webinar https://www.brit-thoracic.org.uk/research-and-innovation/phosp-covid/ registration required to view.
  13. Sly Saint

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    "Kinesiophobia is the most extreme form of fear of movement, and is defined as an excessive, irrational and debilitating fear of physical movement and activity resulting from a feeling of vulnerability to painful injury or reinjury, and it has been reported as a common feature of patients with...
  14. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    " In fact, viral-like illnesses appear to precede ME/ CFS onset in approximately 50% of patients [15]." https://www.researchgate.net/publication/328013919_Chronic_viral_infections_in_myalgic_encephalomyelitischronic_fatigue_syndrome_MECFS
  15. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Signs You've Already Had COVID, Says Dr. Fauci https://www.eatthis.com/signs-post-covid-fauci/
  16. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Haulers: The Continuing Casualties of COVID-19 https://www.emsworld.com/article/1225291/long-haulers-continuing-casualties-covid-19
  17. Sly Saint

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    I like this term, might be better instead of envelope in guidelines(?) "the magnitude or intensity that must be exceeded for a certain reaction, phenomenon, result, or condition to occur or be manifested." "the level at which one starts to feel or react to something."
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