NYC Health
COVID-19 Updates Dec 3 2020
https://www1.nyc.gov/assets/doh/downloads/pdf/covid/providers/covid-19-providers-dear-colleague-updates-12032020.pdf
P-005482/2020
Answer given by Ms Gabriel
on behalf of the European Commission
(4.12.2020)
https://www.europarl.europa.eu/doceo/document/P-9-2020-005482-ASW_EN.pdf
so this is likely to be around the deadline for submission for comments on the draft ME guideline.
I'm not sure if this is a good or bad thing.
Things that may arise in the LC guideline might have some bearing on the proposed contents of the ME guideline.
I'm guessing some on the ME NICE...
Merged thread
from MEA website
"
We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members.
This is a short and simple online survey designed to be accessible to all adults 18+, including...
#MEAction
Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion
https://www.meaction.net/2020/11/30/goodbye-to-graded-exercise-therapy-but-concerns-about-physical-activity-programmes-community-discussion/
"Kinesiophobia is the most extreme form of fear of movement, and is defined as an excessive, irrational and debilitating fear of physical movement and activity resulting from a feeling of vulnerability to painful injury or reinjury, and it has been reported as a common feature of patients with...
"
In fact, viral-like illnesses appear to precede ME/
CFS onset in approximately 50% of patients [15]."
https://www.researchgate.net/publication/328013919_Chronic_viral_infections_in_myalgic_encephalomyelitischronic_fatigue_syndrome_MECFS
I like this term, might be better instead of envelope in guidelines(?)
"the magnitude or intensity that must be exceeded for a certain reaction, phenomenon, result, or condition to occur or be manifested."
"the level at which one starts to feel or react to something."
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.