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  1. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    In Practice, Off-The Shelf Solutions Silence IAPT Client’s Concerns 10th May 2020 "the Talking Therapist does the ‘talking’ not the client" http://www.cbtwatch.com/in-practice-off-the-shelf-solutions-silence-iapt-clients-concerns/
  2. Sly Saint

    Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

    Coronavirus in Scotland: Charity warns Covid will cause a spike in ME cases - as it calls for 'harmful' exercise treatment to be banned article here https://www.heraldscotland.com/news/18437238.coronavirus-scotland-charity-warns-covid-will-cause-spike-cases/
  3. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    Copied from this thread Coronavirus in Scotland: Charity warns Covid will cause a spike in ME cases - as it calls for 'harmful' exercise treatment to be banned article here https://www.heraldscotland.com/news/18437238.coronavirus-scotland-charity-warns-covid-will-cause-spike-cases/
  4. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    Sheffield ME group warning to COVID-19 patients full article: https://www.sheffieldtelegraph.co.uk/health/coronavirus/sheffield-me-group-warning-covid-19-patients-2846732
  5. Sly Saint

    Coronavirus - worldwide spread and control

    research paper mentioned (still going thro peer review) Controlling the SARS-CoV-2 outbreak, insights from large scale whole genome sequences generated across the world https://www.biorxiv.org/content/10.1101/2020.04.28.066977v1
  6. Sly Saint

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    Just been re-reading the therapist manual for GETSET and there is this: https://www.qmul.ac.uk/wolfson/media/wolfson/current-projects/GETSET-therapists-manual-with-appendices.pdf So they acknowledge they know about the reported harms of GET, but dismiss them due to their own beliefs. And how...
  7. Sly Saint

    Cancer-related fatigue and functional impairment – Towards an understanding of cognitive and behavioural factors: Hughes, Chalder et al May 2020

    https://www.sciencedirect.com/science/article/abs/pii/S0022399919309183 (not yet available on sci-hub)
  8. Sly Saint

    United Kingdom: Sussex & Kent ME/CFS Society News

    Sussex ME Society call for NHS services to be further developed https://www.gscene.com/news/sussex-me-society-call-for-nhs-services-to-be-further-developed/ I really wish someone (Carol Monaghan?) would put Caroline Lucas straight on the SMES. I am also at a loss as to how the members...
  9. Sly Saint

    Canada: OPERA MARIPOSA'S ME/FM AWARENESS RAISING& FUNDRAISING SHOW

    Disability-Led Opera Company Raises Their Voice For At-Risk Chronic Illness Community During COVID-19 full article: https://www.broadwayworld.com/bwwopera/article/Disability-Led-Opera-Company-Raises-Their-Voice-For-At-Risk-Chronic-Illness-Community-During-COVID-19-20200508
  10. Sly Saint

    Article (Canada): Park resident granted Premier’s Council Award May 2020

    full article here https://www.sherwoodparknews.com/news/local-news/park-resident-granted-premiers-council-award
  11. Sly Saint

    Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

    short article; rest here http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/
  12. Sly Saint

    Open Epigenetics of Post-exertional Malaise in Patients With ME/CFS: Oct 2020 [This trial is not yet open for recruitment]

    Sponsor Vrije Universiteit Brussel Overall contact Andrea Polli, MSc full details here: https://www.smartpatients.com/trials/NCT04378634
  13. Sly Saint

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    and the second link goes to merckmanuals aka msdmanuals (although not to the CFS page). see https://www.s4me.info/threads/msd-manual-us-chronic-fatigue-syndrome-updated-apr-2020.14921/
  14. Sly Saint

    ME Action: The EU committee on petition is preparing a resolution on ME

    :emoji_bow: as you are at helping to create it!
  15. Sly Saint

    Article (Australia): Thirty-five-year-old living [with ME] in aged care reveals what life is like inside during this pandemic

    Ketra has been forced to live in an aged care facility due to her severe chronic fatigue syndrome. Unable to find suitable accommodation elsewhere, Ketra has had no choice but to stay, and now she's trapped inside as the coronavirus pandemic continues. full article...
  16. Sly Saint

    Covid-19 related treatment and other scams

    another one taking advantage of the situation and hijacking ME awareness day FREE Access to Dr. Jenny Tufenkian's: Flu Prevention and Treatment - 5 Naturopathic Strategies for Beating the Flu https://www.drjennytufenkian.com/ May 12 CFS/ME International Awareness Day: LIVE with Dr. Jenny...
  17. Sly Saint

    ME Action: The EU committee on petition is preparing a resolution on ME

    Research involving Bangor University with relevance full recovery for Covid-19 patients cited by European Parliament https://www.bangor.ac.uk/human-sciences/news/research-involving-bangor-university-with-relevance-full-recovery-for-covid-19-patients-cited-by-european-parliament-43620
  18. Sly Saint

    UK - Resources for help getting food during quarantine and other supermarket related problems

    in the comments was this: https://www.freshpastures.co.uk/fresh-pastures-home-deliveries.php " across the North of England, Yorkshire and the East Midlands. FREE DELIVERY LOCALLY SOURCED PRODUCE ONLINE ORDERING"
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