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I keep trying to get the Royal Statistical Society interested, but keep failing. I would have thought that the number of gross statistical errors and the failure of the medical world to get to grips with it would have been just up their street. Then when the tribunal ruled to release the PACE...

I'd love to have seen the assessment on PACE: no doubt full of the "although .... the committee decided that .... was acceptable and that bias was kept to a minimum ...."

Sorry, @Inara , my strange sense of humour doesn't translate well! Even my friends have problems with it. I was agreeing with you completely: there are too many people in positions of influence and power who become utterly convinced that they are right, and become impossible to argue with. But I...

Or the confidence with which a certain bald-headed member of S4ME makes his assertive comments?

In my case it must be magic dust, because surely my biology would be more consistent and reliable than the random thoughts and misunderstandings rampaging through my brain. Alternatively, I could make a case that all of it is merely mathematics, mostly probability theory. Way back when I was...

There are two additional difficulties here though. The first is that we are talking of the kind of time-frames where getting older is a factor. Certainly it's a factor for me these days. Of course, I wouldn't dream of telling you how old I am now, but when I went down with it aged 49 nearly 20...

It seems to me that the target audience hasn't really been defined. There's an underlying belief that, if we work hard enough, it is possible to define things in clear, unambiguous ways, but that isn't true: we speak different versions of English depending on our backgrounds, and words have...

I'd like to see a study that looked at people with ME who fall ill with other conditions, and their recovery/reactions compared with otherwise healthy folk.

In many ways this reminds me of the suggestions made to us as maths teachers that it was pupils' fear of the subject that held them back. On the surface, that was a reasonable statement to make, because many people are afraid of maths. But the real reason they find maths scarey is that they were...

Thanks. I run a local ME support group, and in my experience, the majority of people with ME would be more like me. It is possible that a subset of ME/CFS patients do have that sensitization, but it is also possible that a subset of ME/CFS patients are one-legged Inuits with hearing problems...

I must be misunderstanding something here @Michiel Tack , or I didn't explain myself clearly enough. If I have become sensitized to pain, in the way that is suggested by the theory, then doesn't that mean than I will react to particular level of pain more strongly than the average person? The...

Now come on @Jonathan Edwards , in fact I never accused any of the experts of being overweight! I did though both understand and agree with your point. But it is this aspect more than anything that has destroyed so much trust. The failure to stand up and say that PACE and other similar studies...

I'd like to see an experiment where some of those supporting the sensitivised hypothesis were strapped down on to a bed, along with me, and we were all subjected to some form of electrical pain, under my control. I'm certainly not the big brute type, but I reckon that 20 years of ME has made me...

The problem is though, Jonathan, that people like Wessely, Sharpe, White, (Chalder?) are regarded as experts in their field, and apart from you and a handful of others, who else in the UK medical or research world is there to challenge them? There comes a point when, in covering up the...

Yet more evidence that I am an oddball. I only read the entry at face value: an interesting description of what was thought to be happening in cells. I didn't assume that it necessarily was a cause of ME, nor that it necessarily caused anything specific to happen. But it is an interesting...

Have you seen this article? Do you know anything more about it? https://www.technologynetworks.com/neuroscience/news/probiotic-use-is-a-link-between-brain-fogginess-and-severe-bloating-307256

Thanks @Hip . I did understand that point clearly as I read it, and as I said, I was writing down comments as I read it as they occurred to me. Actually, you did cover almost everything, it was just that these things occur to me then niggle away and disrupt my concentration, so if there are any...

OK, my knowledge of biology is basic, really basic, but I found it fascinating. I had to look up "cytolytic", and of course it made more sense then. I started to read it late last night, but stood no chance. So here are my comments as I read through it. First of all, just to check my memory...

I didn't know that there was a human on the other side of my computer. Does that mean he or she is watching me through the camera while I type? Why isn't he/she more helpful when I need to curse at the computer? Anyway, from a braindead supporter, well done!

You might be interested to read this article in The Conversation about CBT being ineffective for schizophrenia (link).