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The problem would be getting expert witnesses to testify. I keep trying different people in the UK for one thing or another, and they keep saying that they have heard of the controversy, but are too busy to get involved. I take that as a code for "it's the old boys' network".

Hey @Emsho , I am very impressed with the video. For a first one, that is amazing. The tempo, the variety, the tone!

When we did a "big" move across country (OK, in the UK that only meant 120 miles), I had a small trailer, which I lined with perforated plastic, added some compost, and put in cuttings and splits from my existing garden. But the exchange was delayed, and by the time we moved, the trailer was...

Suppose you consider something like a panic attack. Now I'm one of the most laid-back people you will meet, but I remember being in the shower a few years back, and the postman came with a registered letter to do with my brother-in-law's estate. My wife signed for it, but I remember suddenly my...

All I mean is that I think the psych's approach is based on what they believe to be true, and like any belief can flex and adjust to circumstances. We can explain the lack of logic and consistency in what they say, but I don't think we will ever find a coherent and sensible basis behind their...

To be honest, I think a lot of the difficulties in this thread are caused by logical, careful thinkers trying to work out exactly what the psychs are saying, and I think you are on a hiding to nothing. When I look at the kind of fundamental errors that the psychs have made, and the inability to...

My experience of GPs is that they seem to have tighter constraints on what they can prescribe than we expect. Even if this is not true, in my support group I know of some whose GP refuses to prescribe medication to help with pain because ME is "purely psychological". Many folk with ME have no...

I'm sending you a PM, @Liv aka Mrs Sowester

Exactly, but that is a statistical argument, and we can't expect the psychs who carry out extensive spreadsheet push-button testing to appreciate such ideas. Mind you, the more severe cases are unlikely to be able to attend ME centres, and few offer home visits. If you are talking of local...

I'll not comment on my collection of hats, nor of making fun of my dad's collection when I was a teenager. I think there are some pretty good quotes out there that could be used to hammer home the point that patients are being misled or worse. I'm thinking of an A4 notice at one specialist...

These amounts of money have to be looked at carefully. When other MPs have questioned this in the past, a few non-biomedical studies have crept in, and sometimes the research is more into chronic fatigue than ME. NIHR have always taken the stance that they provide facilities for research, but I...

I forgot to say that I do have databases that would allow us to work this out, but unlike NIH, the UK accounts are not presented in any way that allows you to easily see how much is spent on different conditions. That would take hours of work, and I'm not sure that it is worth doing. I'm pretty...

I'm not really a stats man, but from my calculations, if you add up all the grants given from the three main funders, the MRC, NIHR (virtually none, except for just recently funding Crawley), and Wellcome (virtually nothing), I'd be surprised if it comes much above £12 million. Of that, I'd be...

ME Marge (who is our second rep) and I met up this afternoon, but it was a social get-together of the local support group. We're planning on having a chat about the scoping document soon, just to get our brains around it. So unless anyone beats us to it and has some thoughts, we'll start a new...

There are certain exceptions to the copyright rule, and we are using it for a charitable cause, so I think we can take that risk.

In that case, why not go ahead with Allele's poster? I've printed it out and it's certainly good enough quality (well, apart from the fact that my printer ran out of black ink?). I'll pass it on to Ben in case he is able to add it to their posters, and I'll pass it on to a couple of folk who are...

Nice one Allele. I've got photoshop applications, and so could tidy it up and make it suitably high-res for printing out at A4 size (it's not too bad actually as it is for size), but where did you get the image? Is it copyright? Do we need to worry about that? What if it hits the news headlines?

Yes, but the time that I had read it and caught up, there wouldn't have been any time to create an official poster. I could try and knock one off tonight, put it up here for anyone who is going to run off, and send it as a suggestion, but what sort of content would it need to have? Happy...

I know that she was thinking of doing this – we discussed the general idea a few months ago, but I haven't heard anything more until this thread. Sorry, can't help!

I did as instructed, kind sir, and Ben wanted to know whether we had anything in mind other than sharing on social media. He said that they were pretty busy at the moment, and would find it difficult to fit it in. I mentioned that JenB suggested it, but he was uncertain as to who that was.