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Most people who sew regularly tend to have more than one machine, because it's easier to keep them set up for different things. It can start with a nasty case of SMAD (sewing machine acquisition disorder) as you try to find The One, until you realise it doesn't exist and different mechanisms...

[My bold] I expect having to drag yourself out of the house and move your body much more will do that, even as it's making you feel worse.

The conversation prompted me to search again for one of the models I've been looking for, and what's made me happy today is that I found a very good one for £40. Thank you all for talking about it! :laugh: It's a 100-year-old Jones tailors' machine, with a vibrating shuttle and a harp space...

It reads to me like an honest attempt to compare studies of coping strategies. The trouble is that it's based on assumptions that aren't even questioned, on references that appear to be baloney of the first order in some cases, and on an online survey of people with self reported ME. It's an...

It depends what system you're using—I think it's quite easy if you use the Adobe printer on a Windows machine, as you can alter the settings in the document properties. It's a while since I used Windows, but the Adobe website might have better info. If you're on a Mac, rather than using the...

If you're okay using a pedal, Ian, you might do a lot better with a reconditioned old machine. Many of them will happily do decades of recreational sewing with very little attention. Sewing machine engineers tend to be specialists who know what they're doing, so you'd just need to check that a...

It's from Daniel, about God having numbered the days of your kingdom.

They're probably just responding to the way they're taught. A person with any insight at all would ask them to consider the difference between perfectionism and doing a thing in the perfectly ordinary (and maybe even slapdash) way the respondent was used to pre-illness. But this is a...

I bloody well hope so!

@Midnattsol, a follow-up message from MSEsperanza:- The reference that was asked for is: Bertelsmann Stiftung; BARMER GEK (Eds), Gesundheitsmonitor Nr. 2/2016: Informierte Patienten und unzureichend vorbereitete Ärzte...

I don't know, to be honest, I posted it on behalf of @MSEsperanza. It's paywalled for me too, so I've only been able to read the quoted and translated parts.

Follow-up post from @MSEsperanza. Adding to the post on IQWiG's preliminary report above: I think the issue should not be 'shared decision making' but 'informed decision making' -- as long as patients are able to make decisions, they have to decide, not the clinicians. The clincians must...

Too late, though. They've now discovered the extent to which medicine is a survival of the fittest profession: you're in it until you stumble, and then, instantly, you're nobody.

Missed another reply, sorry! Lipoedema. There are others, including familial multiple lipomatosis and Dercum's disease. The photos you see online are a bit misleading because they're usually of people with highly visible lumps and bumps. Most of mine aren't visible in that way; some of them...

Not all cases will be clear cut, but you'd think at least the staff who were deployed to Covid wards with inadequate PPE ought to have a very good legal argument, whatever their job title. It wouldn't surprise me if proceedings followed their normal course, though (i.e., justice takes decades...

From @MSEsperanza: IQWiG: Does shared decision-making between doctor and patient lead to better treatment results? (Not specifically on ME/CFS -- didn't check how they investigated the topic ) Google translate -- slightly edited to remove glitches with inserted links: Preliminary...

Good news that such a strong team will be looking at this more closely.

Tinnitus is also a suspected side effect of some meds, including tramadol (which I take at night some of the time). It's not listed formally as a side effect, but when I asked our pharmacist about the possibility, he said that it is reported by some patients. I've had tinnitus for so many years...

You'd also have to cut out every source of potato starch in prepared food if you eat it—it's in lots of stuff because it's a cheap filler and sweetener. I knew inside three days I'd probably found my bête noir, and I was certain within six. If you can't digest something there's no need for...

I have, only mine was four years! Long story short, I abruptly lost the ability to digest potato starch. I went through various exclusion diets, but I didn't think of potato intolerance because I'd never heard of it. As soon as I twigged (thanks to a horrible cold virus and a multipack of...