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  1. Arnie Pye

    Impact of hypnotic safety on disorders of gut-brain interaction: A pilot study, 2020, Damis and Hamilton

    This is just vomit-inducing. And what on earth is "hypnotic safety"? Yuck, yuck, YUCK. Many years ago I paid to see a hypnotist to try and get help to stop smoking. In just a few minutes it turned into a terrifying experience. The hypnotist was male. [Edit: And I'm female.] He told me what...
  2. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Best presentation on Covid-19 I've seen. Thanks for the heads up.
  3. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Having read the article, my "socially unacceptable" response to this : is that it would have been so much better for everyone if the people who got Long Covid were a) mostly male and b) in their 20s and 30s. Male illness is always considered to be more "real" than female illness therefore is...
  4. Arnie Pye

    Restless legs syndrome

    @Ravn The only other things I know of that might cause restless legs are low sodium and low potassium. I've rarely had either of these tested and I wouldn't supplement them as a regular thing. But if I do get restless legs, cramp, muscle twitching etc I will try a very small amount of salt and...
  5. Arnie Pye

    Restless legs syndrome

    Wow, thank you for the compliment. :) :hug:
  6. Arnie Pye

    Restless legs syndrome

    Have you ever tried magnesium supplementation? It's actually one of those nutrients that can't really be tested very well. Very small amounts of the body's magnesium is found in the blood stream. Most of it is in other tissues. When the amount of magnesium in the blood drops a bit low the body...
  7. Arnie Pye

    Restless legs syndrome

    There are other possibilities - magnesium, for example. If you search for "best and worst forms of magnesium supplement" you might find some interesting info on the subject. I'm an inveterate experimenter when it comes to supplementing. :)
  8. Arnie Pye

    Restless legs syndrome

    People should be very wary of dopamine antagonists, and if they start taking one they should start with a tiny dose and build up very, very slowly. I took a dopamine antagonist a few years ago which was supposed to help a gut problem. I felt odd after just the first one. I was still driving at...
  9. Arnie Pye

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    I can remember as a child that my father refused to believe that children could actually be in pain. I had a doctor who appeared to believe that too. Edit : I should expand on that... My father didn't believe in pain in children if it was from an invisible source. I also remember neither of my...
  10. Arnie Pye

    Restless legs syndrome

    The most common cause of restless legs is low iron and/or ferritin. You don't have to be anaemic or suffering iron deficiency to get restless legs. Efficacy of oral iron in patients with restless legs syndrome and a low-normal ferritin: A randomized, double-blind, placebo-controlled study CSF...
  11. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sadly, there are lots of people who are continuing to dismiss, reject, disparage, disbelieve and troll anyone who mentions Long Covid, ME, CFS, and PVFS. I found most of the opinions on this thread horrific. It's a public thread so it is not necessary to have a Twitter account to read it.
  12. Arnie Pye

    'The dementia that can be cured' - Guardian article about autoimmune neurological diseases, 2020

    From personal experience I would suggest that gluten can cause this problem. My brain fog/ability to think gets worse if I eat gluten despite testing negative for Crohn's disease. My balance, which is also affected by the NPH I mentioned in my previous post, is also affected badly by gluten...
  13. Arnie Pye

    Coronavirus - worldwide spread and control

    That is weird. In the UK the government was blaming almost every death on Covid-19 for several months. Since I don't keep up with Covid news I'm not sure if this is still true.
  14. Arnie Pye

    'The dementia that can be cured' - Guardian article about autoimmune neurological diseases, 2020

    There is another kind of dementia that can be cured, or at the very least deterioration can be slowed down. It's estimated to be the cause of about 5% - 6% of cases of dementia. That condition is Normal Pressure Hydrocephalus (NPH). It is a condition that is normally associated with the elderly...
  15. Arnie Pye

    New Name For "Brain Fog"?

    Could you describe your brain fog? I'm curious. I know at my worst that I struggled to read a recipe, prepare the ingredients and cook. I often found myself trying to do things in the wrong order, and found that, for example, if a recipe had 6 ingredients I might be able to read the 2nd, 3rd...
  16. Arnie Pye

    New Name For "Brain Fog"?

    I've come across the term "foggy brain" in a thyroid research paper quite recently. I don't like it. I prefer the term brain fog. Once someone has suffered from it it can't be mistaken, in my opinion.
  17. Arnie Pye

    The peri-menopause in a woman’s life: a systemic inflammatory phase that enables later neurodegenerative disease, 2020, Raval et al

    Maybe that explains why I have no energy and a rapidly deteriorating brain. I had my estradiol measured last year and it was so low that it was just reported as < 18 pmol/L - Range < 100 pmol/L. I got the impression they couldn't measure any more precisely than that when levels were so low.
  18. Arnie Pye

    UK Petition : Stop gaslighting chronic illness patients

    Thought this might be of interest. ME/CFS gets mentioned. https://you.38degrees.org.uk/petitions/stop-gaslighting-chronic-illness-patients It appears to be very new. It reached 10 signatures only yesterday, and at time of writing has 649 signatures.
  19. Arnie Pye

    “I must have contracted swine flu, bird flu or Ebola.”: How patients and general practitioners negotiate liminality during consultations, 2020, Bank

    For those people (like me) who don't know what liminality means : Edit : I started reading the article, but even finding out what "liminal" means hasn't helped me to understand it.
  20. Arnie Pye

    Keith Jarrett Confronts a Future Without the Piano

    If you delete cookies and site data for just the NY Times you can read the article.
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