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You'd think with 7 authors, someone would have noticed. ;) Agreed it's a very nice summary. Hopefully they will fix the cut-off ending. I'd like to share this with some doctors when it's corrected. I sent quick notes to WebMD (ETA: and Medscape) editors. If they don't respond, I will send...

Apologies for off-topic, but it is interesting to look at how Google portrays various diseases.

The Monster Disease Medical Schools Don’t Mention http://whchronicle.com/the-monster-disease-medical-schools-dont-mention/ Nice article by Llwellyn King calling on medical schools to teach their students about ME/CFS. As usual, King conveys the severity of the disease. This article is showing...

Sometimes the little victories just feel so very rewarding. :)

An update from Healthwise, after I argued that ME/CFS should not have warnings about patient groups causing harm, as other comparable diseases have no such warnings: This change should then be reflected on the Kaiser Permanente website, as well as other sites that subscribe to Healthwise content.

Of perhaps some relevance, from the recent expert clinician summit in Salt Lake City (bolding mine): Personally, I would like to see LDN tried more often by doctors.

Well written, @JaimeS. Thanks for doing this. I think the CDC's emphasis on pacing gives a way to open up dialogue with certain healthcare providers. It's a starting point, at least. Some providers still recommend standard exercise with no consideration for activity management or the...

Just sent off a note to Healthwise. I expressed concern regarding their list of ME/CFS patient group warnings, noting the absence of patient group warnings for other diseases. I also invited Healthwise to join S4ME.

The major problems I see are the recommendation for increased (aerobic) exercise, the lack of specific treatment recommendations (besides exercise), the requirement for individualized chronic care (very expensive and without strong evidence it will lead to better outcomes), and putting primary...

IQuity has been covered in the forums before, but this looks like new news. IQuity claims they can predict Multiple Sclerosis with 90% accuracy at least 8 months before traditional methods. They also claim their approach "can be applied to any disease". IQuity Launches Healthcare Analytics...

Abstract: Assessing Synaptic Density in Alzheimer Disease With Synaptic Vesicle Glycoprotein 2A Positron Emission Tomographic Imaging https://jamanetwork.com/journals/jamaneurology/article-abstract/2687472 Press release: Yale-developed test for Alzheimer’s disease directly measures synaptic...

Further, belonging to ME Association in the future implies susceptibility to viral infection in the past. This is a quantum mechanical effect, and so perhaps we need more quantum physicists working on solving ME/CFS. ;)

In the future, perhaps. But right now there is a lack of evidence base. I don't recall the CDC mentioning step or heart rate monitoring. There is much evidence regarding managing blood sugar levels and diabetes. Not so much when it comes to ME/CFS and heart rates. Without what they consider a...

I should mention that Healthwise lists no warnings about Multiple Sclerosis support groups, Fibromyalgia support groups, or Parkinson's support groups. Only ME/CFS has a warning list of support group types to avoid and that certain types of groups can cause harm. :cautious:

Cardiovascular conditions in persons with multiple sclerosis, neuromyelitis optica and transverse myelitis (2018) Saroufim et al Abstract: https://www.msard-journal.com/article/S2211-0348(18)30220-7/abstract Summary article: Hypertension More Common in MS Patients Than General Public, Study...

This "not a blanket prescription" is a problem. Modern managed healthcare demands standardized treatments to be rolled out across the organization. For example, Kaiser Permanente's flavor, called "Complete Care", "creates a standardized infrastructure and approach to disease management"...

@Keela Too Thanks for pursuing this. The CDC gives so little specific treatment guidance, so specifically recommending increased aerobic exercise will be noticed by healthcare providers. The CDC is telling healthcare providers little has changed, that ME/CFS can continue to be treated with...

This is just somewhat related. I remember Healthwise having some warnings about "CFS" support groups in the past. Unfortunately, I never thought to save such pages. Currently, Healthwise encourages support group participation, but has some warnings, including "Some groups may cause more harm...

UCSF Makes Breakthrough With Chemical Exposure Study https://sanfrancisco.cbslocal.com/2018/07/22/ucsf-makes-breakthrough-with-chemical-exposure-study/ The goal is to find which chemicals are harmful to pregnant women.