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For me the IBS segment is unhelpful. It's always riled me right from the days Wessely decided IBS & CFS could be dumped as facets of the same functional syndrome. Continued by the likes of moss Morris who often put CFS and IBS in the same paragraph, the same category, with the same behavioural...

Looks like miss Rachel french has expertise in Gastroenterology, probably a surgeon, I am surprised she has expertise in FM & ME Professor Frances Williams Campus Dean St Thomas' Professor of Genomic Epidemiology Start date at Kings: 1/10/2007 Department Twin Research & Genetic Epidemiology...

Hmmm. Compared to my response to the iime one, still looks like lots of spaces filled with stuff outside ME & CFS biomedical research. And psychiatrist carmine pariante has two slots one on inflammation connecting brain and body, his specialism is in inflammation in depression and stress I...

It is simply awesome news, it looks like a study that seeks to answer a lot of big questions and the money is coming from the NIH immediately , rather than us trying to slowly crowdfund for this as well as lots of other things as used to happen.

Great news for IOM and us More here https://www.healthrising.org/blog/2018/06/25/davis-nih-grant-chronic-fatigue-syndrome/ Not sure if Corts funding figures are accurate Edit IOM are announcing it as multi-million dollar funding, so suggests yearly figures?

It is a shame that the well articulated pace criticisms weren't printed, but I'm not sure if thats more BBC unwilling to Print something controversial against the establishment line than not knowing the material. Ultimately at the top there seems no one who Can take on PACE except NICE. I...

Reasonable NHS diminishes the illness in Its description The reason why PACE is criticised by Carol was sadly missed out , it goes beyond just contradicting the outside patient experience. The trial was a fix, Michael can still spin ideas that GET isn't being done correctly outside his trials...

I think it depends what's found eg Newton is already in a minor way, trialing a diabetes drug that seems to help with some of the energy in the cell. Davies thinks the metabolomic issues might be treatable if they can get more info. If the Japanese PET scan is positive for inflammation we might...

I Apologise for sounding totally negative in my responses it's just this positive , vague spin, perhaps it's genuine for newbie prof Chris who has a , conveniently for the MRC, recent starting point in all this - without recognition of what has been our reality of suffering and their...

The question implies patients dissatisfaction comes from patients misunderstanding, I don't think that at all. However the CMRC define themselves, they've been naive, ineffective, weak and are ony now calling for more money to be put in, only now working more on biomedical research and Breaking...

I also don't agree, as I've said, with the nows the time - it was before - or the window will shut talk. I don't think #MEAction have any intention of the patient movement doing anything but becoming louder until our aims are reached.

NICE doesn't require PEM , it requires PEM or PEF, PEF could be a deconditioning response and doesn't correlate with the global exacerbation of symptoms most experience Previously Holgate with charity support wanted NICE criteria to form the basis of MEGA so this will be a big question for me...

I actually think it's a cheek to even raise the Ricky gervsais thing and say he should give us an apology, it's irrelevant. It's not HIM I want an apology from or action from and then the minister proceeded to mainly defend the [[appalling]] status quo whilst jarringly quoting unrest as if he...

Yes Stephen pound was so caring and persuasive but had the name wrong and then throwed in it could be psychosomatic WTF, not Helpful. And yes FITNET & magenta, LP Research wasn't even mentioned which was a big error, talking about PACE and kids but not the Behavioural research on kids which Is...

Today should really have been about action.

Some of the speakers including Carol & Ed davey were absolutely great , especially in following iimes £20m call for research but the minister has largely just defended the status quo, peppered rather ironically with quotes about "unrest" which was all about challenging the status quo and yet...

The doctor probably reflected typical NHS gp, i.e. Only superficial understanding. Doesn't seem to have checked out for example the bmj info which is actually quite good on current scientific knowledge. There was a question she asked at the start regarding Emma's reaction to the stigma which I...

I think it's generally pretty good. The psychological was only raised as the basis for pace, which it kind of was, although Jonathan's right it's easy for wesselyites to step in and say that's a simplistic misrepresentation. The BPS model isn't saying "it's in your head" it's saying that...

Yes as I wrote it I had the sense of "been here before". I didn't search up the PR thread , I searched Carol head and then saw the thread and then it all CAme back. Im sorry if I'm misrepresenting you again but how you write including on the other thread the view that it's not the states job...

The question on why the millions affected haven't to date in any way been mobilised is an interesting one. Why money isn't coming in from the millions affected and their loved ones is obviously debatable, like any issue there will be different opinions, but an interesting one. Perhaps a survey...