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  1. Sasha

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Is this another thing that needs a new thread in order to gain attention?
  2. Sasha

    David Tuller: Trial By Error: My Six-Month Review

    A great six months, @dave30th - much appreciated!
  3. Sasha

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Am I right in thinking we still don't really know what time the debate is, other that it's some time (possibly hours?) after 9:30 am?
  4. Sasha

    World ME Alliance, was previously IAFME: International Alliance for ME

    Would you like to add this to the calendar, @Michiel Tack?
  5. Sasha

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I just had a look at that and I see that the list of attendees is online. I don't know if that's everybody, but not everyone may be happy to be listed.
  6. Sasha

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    When I filled in the form and sent my email, I got an autoreply from my MP asking me to provide my full name and address if I hadn't already - so I sent a second email. @Andy, I don't know if you want to mention this in your post above? There's space where you could provide your full address...
  7. Sasha

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Does this new call to action need a thread of its own? :) I'm not a fan of thread-proliferation generally but a call to action can easily get buried in a thread that has announced some news and that people don't feel they need to keep reading. This is an important call to action - maybe one of...
  8. Sasha

    What could be done about the Science Media Centre (SMC) in the UK

    The SMC is a registered charity (surprisingly) so if it's in contravention of any charity legislation, that's a point of weakness.
  9. Sasha

    MPs debate fibromyalgia after Chesterfield woman's petition

    Thanks, @Andy. That was interesting. The message contains errors/typos, and is confusingly laid out, with a picture of text at the top that stops partway down, before you get into the actual text of the petition. But that clearly didn't stop it being successful. It's quite a simple message - it...
  10. Sasha

    MPs debate fibromyalgia after Chesterfield woman's petition

    I searched for the actual petition but couldn't find it. I was curious to see what it said, because ME petitions on the 10 Downing Street site have reached much lower number of signatories. Perhaps we could learn something from the approach.
  11. Sasha

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    I agree - I'd have liked an option saying that GPs should know that PACE and its ilk are a scandal and that the NICE guidelines can't be trusted.
  12. Sasha

    David Tuller: Trial By Error: My Letter to LP's Study's Senior Author

    My understanding is that in the social sciences the principal author is listed first and in medicine, they're listed last, so when you get a psychological medicine paper, it's very confusing! But this paper was published in Archives of Disease in Childhood, so I'd expect the principal author to...
  13. Sasha

    There were not many ME/CFS research papers published in 2018 in comparison to many conditions

    Some good tweets from Guthridge have been posted here. Is he a researcher?
  14. Sasha

    Klimas lab end-of-2018 update

    This is the research bit from a fundraising message from Nancy Klimas's INIM (broken up for ease of reading, with a link to the fundraising at the bottom): Research Gulf War Illness (GWI) Dr. Nancy Klimas has carried the research vision in the Institute for Neuro-Immune Medicine and has...
  15. Sasha

    Donating to Klimas clinical trial

    Highlights I've selected from a message from Nancy Klimas's INIM (broken up for ease of reading): INIM Highlights and Funding Opportunities 2018 has proven to be an exciting year for the INIM with real progress in our efforts to find a cure for ME/CFS and GWI. The INIM has been successful in...
  16. Sasha

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    Wouldn't it be more likely that someone would make a mental connection if a lot more scientists were interested in the question, and wouldn't that be the case if the NIH were danging $250m? I just struggle with the idea that if there's a burning and important problem to solve, the government...
  17. Sasha

    Dr Karl Morten - UK researcher based at Oxford University

    Thanks, @Andy, and many thanks to Karl Morten for replying on Boxing Day when he's travelling! What a star. I hope he gets that MRC funding!
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