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Neuronal antibodies? I didn't even know they were a thing.

People who want a name could also print off 'my' badge onto white paper and cut it out so that it has a band of white underneath it, where they could put their name. :)

Here's a search using the #BRMEC8 tag: https://twitter.com/search?q=#BRMEC8&src=typd A few messages up from the colloquium already (although they're from a stuffed bear!)...

Day One today. I wonder if anyone will be tweeting from it? The schedule is on this page but I can't provide a direct link to where you have to scroll down and there's some finding and clicking to do so I hope IiMER don't mind that I reproduce the schedule here (I'd much rather see it on a...

People arriving:

Congratulations, Robert - great job packing a lot into a short letter. :thumbup:

Sorry if people have already said this, but what is the next step in this process?

Thinking more about a badge... Not only would it help those S4ME folks to meet up who want to, but people wearing it would be a good advert for the site - and of course there'll be lots of researchers there, which is an audience we want to reach. So here's the S4ME logo, with the web address...

I don't think so, Andy - I don't see any biological measures in there. Komaroff was comparing levels of three particular biological things.

IIRC it was a fairly large (hundreds of patients?) study that he'd been involved with quite a few years ago. He had a slide in his talk summarising the findings, and one of the odds ratios was over 20, I think, but I can't remember more than that. Looks like we'll have to wait for the webinar...

@Jonathan Edwards - in Dr Komaroff's webinar this week, he referred to an old study of his showing big differences on three tests between PWME and healthy controls but in response to a question about why these weren't being used as biomarkers, he said (in essence) that they weren't...

Another excellent show, @Gary Burgess! I've never heard Jane Colby speak and I was very impressed. A wonderful person to have on the side of children with ME (and their parents). What struck me especially was when she pointed out the irony that those who call this disease 'chronic fatigue...

Semi-seriously, you could all have a badge! Just needs someone to design something and you could all just print it off on paper and pin it to your clothing. :)

@Graham - it's also likely that those most likely to join a self-help group are those most in need of help - i.e. those at the relatively severe end of the spectrum, and less likely to improve. It's the old 'correlation is not causation' thing again. Being in a self-help group doesn't cause you...

From the ME Association: Can you help? We need short video clips for a Sky One series ‘What’s up TV’ that will campaign for M.E. | 25 May 2018 Following a very successful ME Awareness Week, Sky One have been in touch and want to champion M.E. as a campaign for their series ‘What’s Up TV’...

I think it would be better to have ME as the NICE poster child of how a disease that isn't yet understood biomedically shouldn't be treated as though it's psychological by default. That way, the poor (non-ME) patients who get a MUS diagnosis might benefit from the same logic and the same...

Do you want to add it to the calendar, @Andy?

The PDF is terrific and must have taken a heck of a lot of work. :thumbup:

I haven't seen much of a buzz about this. Are you going, @Jonathan Edwards? Anything in particular that you're looking forward to?

Doh! You're right. Thanks!