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  1. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  2. Sly Saint

    A general thread on the PACE trial!

    from 2011: " The Lancet 8 March 2011 · Co-author of the largest-ever study of CFS/ME treatments, Prof. Trudie Chalder, tells us why there is such a range of therapies for the illness. She says that patients who have been told to simply get some exercise, rather than receive professional...
  3. Sly Saint

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Only just came across this organisation: Positive.org from their website: https://www.positivegroup.org/the-positive-approach/ The Team The Scientific Advisory Board Professor Trudie Chalder https://www.positivegroup.org/the-team/
  4. Sly Saint

    2021 Pan-Europe ME Patient Survey (EMEA)

    I'm assuming that 'Great Britain Northern Ireland' is UK. (never seen it put that way before).
  5. Sly Saint

    ME Awareness Day / Week / Month, May 2021

    CDC has a dedicated page on its website: ME/CFS International Awareness Day https://www.cdc.gov/me-cfs/resources/awarenessday.html I was surprised to find West Suffolk NHS also has a page...
  6. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Talking Therapies Institutionalised Psychologising of Physical Health Problems 27th April 2021 full blog here: http://www.cbtwatch.com/talking-therapies-psychologising-of-physical-health-problems/ eta: post is by an anonymous IAPT therapist, not Dr Scott.
  7. Sly Saint

    Adverse events & deterioration reported by participants in the PACE trial of therapies for chronic fatigue syndrome, 2014, Sharpe,White,Chalder et al

    https://www.sciencedirect.com/science/article/pii/S0022399914001883?via%3Dihub (was this data ever released?)
  8. Sly Saint

    News from Cochrane

    eta:
  9. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    In addition to the actual therapy being bogus, it's worth, I think, also pointing out that the whole LP set up almost amounts to a type of pyramid/ponzi scheme. After the initial cost of their training (which is expensive), LP practitioners have to maintain their number of clients up to a...
  10. Sly Saint

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    thread on that here: https://www.s4me.info/threads/encephalitis-lethargica-the-forgotten-epidemic.15829/
  11. Sly Saint

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    but don't the new guidelines in effect give fewer options(?)
  12. Sly Saint

    ME/CFS services in the United Kingdom

    job ad: https://www.nhsjobs.com/job/UK/Hertfordshire/Stevenage/Hertfordshire_Community_NHS_Trust/MSK_Chronic_Fatigue_Syndrome/MSK_Chronic_Fatigue_Syndrome-v3111553?_ts=1 @PhysiosforME
  13. Sly Saint

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    https://www.pharmiweb.com/press-release/2021-05-07/virios-therapeutics-to-present-at-the-benzinga-global-small-cap-conference
  14. Sly Saint

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    but he (Pariante) is very tight with SW and a lot of his work is on depression. All of the bPS group are just dying for something that 'proves' the correlation between ME and depression.
  15. Sly Saint

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    the CBT/ACT gravy train : Psychologically-informed practice for treating people with pain - 10-11 Jul. by CPD University College of Osteopathy https://www.eventbrite.co.uk/e/psychologically-informed-practice-for-treating-people-with-pain-10-11-july-2021-tickets-59953094319
  16. Sly Saint

    FraudListing.com: a project to keep track of quack treatments for ME

    then there's this one: "Chronic Fatigue Syndrome Cure" https://www.thiscureworks.com/
  17. Sly Saint

    FraudListing.com: a project to keep track of quack treatments for ME

    don't know if this comes under fraudulent treatments but they could at least try to get the symptom description right: (I'm assuming they mean PEM?) https://www.torontonaturopathicmedicine.ca/chronic-fatigue-syndrome-cfs/
  18. Sly Saint

    Deconditioning does not explain orthostatic intolerance in ME/CFS, 2021, VanCampen, Rowe, Visser

    Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
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