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Pretty much like the HRA response re the PACE trial. What is the point of regulators if they only check that 'the paperwork is in order'; who's regulating the regulators?

from an email

from an email from #MEAction "Join us for interviews Throughout the day on 12th May, log on to #MEAction UK or #MEAction Scotland Facebook pages to watch interviews with researchers, health professionals, authors, MPs, people with ME and carers. We will be featuring a range of speakers such as...

Abstract Psychosocial and socioeconomic adversity in early childhood (termed ‘social adversity’) can have lifelong detrimental effects on health and development. Physiological stress is one proposed mechanism by which social adversity ‘gets under the skin’. There is substantial research...

Anthony Harrison, Reza Safari Tom Mercer, Federica Picariello, Marietta L van der Linden, Claire White, Rona Moss-Morris Sam Norton** Abstract Background: Fatigue is a common, debilitating symptom of multiple sclerosis (MS) without a current standardised treatment. Objective: The aim of...

Building a community of teaching, research, & activism about disability https://disabilitystudies.nyu.edu/ Emily Lim Rogers https://www.emilylimrogers.com/

Fibromyalgia And ME Sufferers Urge Malta To Recognise Their Invisible Condition As A Disability https://lovinmalta.com/news/news-human-interest/fibromyalgia-and-me-sufferers-urge-malta-to-recognise-their-invisible-condition-as-a-disability/ (note: Geradas home country)

(I haven't listened to it so cannot comment on content)

https://www.burnham-on-sea.com/news/burnham-on-sea-artist-donates-pet-portrait-to-charitys-virtual-bake-off/

(Dolphin posted a copy of the old one) the link in OP now goes to a newer version 2 updated Feb 2021 https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf I haven't been...

Given the rise in ACT 'research' this might be useful/of interest: https://contextualscience.org/act_randomized_controlled_trials_since_1986

P132 Redefining refractory disease in RA and adult polyarticular JIA: a Delphi consensus study Hema Chaplin, Ailsa Bosworth, Jessica Meehan, Rona Moss-Morris, Heidi Lempp, Sam Norton https://academic.oup.com/rheumatology/article/60/Supplement_1/keab247.128/6251630

Guidelines British Society of Gastroenterology guidelines on the management of irritable bowel syndrome https://gut.bmj.com/content/early/2021/04/27/gutjnl-2021-324598

Abstract Neurological disorders, including neurodegenerative diseases, are collectively a major cause of death and disability worldwide. Whilst the underlying disease mechanisms remain elusive, altered mitochondrial function has been clearly implicated and is a key area of study in these...

Merged thread More Support required for those with 'Invisible illnesses': http://www.iomtoday.co.im/article.cfm?id=61558&headline=More support required for those with 'invisible' illnesses&sectionIs=NEWS&searchyear=2021 a locum psychologisto_O:banghead:

‘Hard to accept’: Tiff Hall reveals health battle https://www.news.com.au/lifestyle/health/health-problems/tiffiny-hall-has-opened-about-a-longterm-health-battle/news-story/ce36187f04c824916f0a437294d78c90

Trial By Error: Professor David’s Third Mis-Citation of Seminal Study of “Medically Unexplained Symptoms” https://www.virology.ws/2021/04/26/trial-by-error-professor-davids-third-mis-citation-of-seminal-study-of-medically-unexplained-symptoms/