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TC explains the 'biology' of CFS. From TC & Mary Burgess book 'Overcoming chronic fatigue'

same as in CODES project "TC talks briefly about the CODES trial .. and said that the therapy improved Quality of Life for the patients."...

I posted this on another thread NHS site on MUS: https://www.nhs.uk/conditions/medically-unexplained-symptoms/ NICE: https://www.evidence.nhs.uk/search?q=medically+unexplained+symptoms one listing at last link...

very interesting program on BBC https://www.bbc.co.uk/iplayer/episode/m000pjr1/lockdown-10-following-the-science "The scientists behind the scenes tell the extraordinary story of what really happened in the run up to the first lockdown, when ministers claimed to be 'following the science'."

exactly this; TC has said as much fairly recently although not using MUS: " The term 'somatic symptom disorder' which is very controversial but I really like it. I like it because the same model can be applied irrespective of the cause of the symptom"...

The more I think about these severity level labels the more I think they should be scrapped altogether. They can be applied to the individual symptoms as per most other illnesses eg pain, fatigue but as an overall label they can be misleading. I would like to see a disability scale similar to...

https://www.s4me.info/threads/nice-me-cfs-guideline-draft-published-for-consultation-10th-november-2020.17687/page-18#post-303214

see https://www.s4me.info/threads/bacme-position-paper-on-the-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-oct-2020.17360/#post-295616 "our NHS service has for some time been moving away from a GET approach" If this is true then you have to question the ethics of...

@Jonathan Edwards

I imagine those names will go down like a lead balloon with 'long-covid' patients.

Graeme Jones and Annie Pettersson at Nordic Clinic Stockholm has interviewed Jonas about ME/CFS and his unique research. You can view or listen to the full interview below. https://nordicclinic.se/interview-with-me-researcher-jonas-bergquist/ also on youtube eta: in english

https://www.nature.com/articles/s41598-020-77105-y

The key thing to note in the NICE guidelines evidence searches is that they initially defined the condition they were searching for evidence on (ie ME/CFS) and rated it accordingly. If Cochrane insist on redoing the exercise review they need to decide and make it clear which criteria they are...

why aren't they using 'encéphalomyélite myalgique' ?

I think the problem is most people understand 'recovered' to equal 'cured' and psychiatrists rarely cure people.

Doctor forced to give up her job after months of terrifying covid-19 symptoms calls for one-stop clinics A doctor who was forced to quit job after getting covid-19 warns patients left to recover at home need specialist help, and not pushed into ‘exercise’ programmes that can make them feel worse...

But we shouldn't have to. The difference between the MS guidelines and those for ME/CFS show that they are coming from two very different angles. MS as a recognised serious incurable neurological illness regardless of severity and ME as this kind of nebulous, 'is it an illness or isn't it'...

also works for Hazel O'Dowd https://www.nbt.nhs.uk/our-services/a-z-services/pain-clinic/pain-clinic-team