Search results

hmm https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/cfsme-rehabilitation-checklist eta: https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/chronic-fatigue-syndromeme-3

also it says supervised programme?

Guests: Mady Hornig, Fiona Lowenstein, and David Tuller https://www.microbe.tv/twiv/twiv-680/ Watched it/listened to it last night in a few sessions. This is just from memory. A lot of interesting stuff on the science/biology side for both Long Covid and ME from Mady mostly in the latter half...

Not a training course but worth keeping an eye on as is for GPs ME (myalgic encephalitis) https://gpnotebook.com/simplepage.cfm?id=-1952841719 diagnosis https://gpnotebook.com/simplepage.cfm?ID=-650837995

they can; MS, PACE 'We prefer the definitions of recovery we used' eta: also standard in all psych related stuff 'Recovery is a journey, not a destination'

That surely cannot be by Peter 'Denton' White?

Didn't NICE, or might have been DOH, acknowledge that ME is classified as a neurological illness? So why is 'Chronic fatigue syndrome' (note this will also have to change to ME/CFS) listed as a 'stand -alone' and not under Neurological conditions on the NICE website...

If anyone has the time/energy, I think it might worthwhile to go over the guidelines and make sure that this 3Ps model cannot be applied to them otherwise we could be looking at more of the same treatment, just worded slightly differently.

see also https://www.s4me.info/threads/open-medicine-foundation-now-in-canada.11075/#post-299275

re BACMEs use of 'cause' (deconditioning model). I found this slide from NHS Oxford on the 3 Ps which seems to illustrate BACMEs approach.

now the NICE guidelines are out it is pretty obvious that BACME had some kind of preview of the contents.

hmm, well like most of the 'experts' at the SMC they probably haven't read the whole guideline and the evidence it was based on (the PACE contingent just seem to be p***** off that their beloved trial was given the :thumbsdown:)

what are the implications for this and any other GET trial now with new guidelines?

the Guideline itself

General comment on guideline as a whole; good that there is coverage of severe/very severe and children in particular, but as per usual 'moderate' are barely mentioned, and the general impression is that if a patient is not severe/very severe then they are 'mildly' affected.

conveniently omitting the other earlier patient surveys that showed the same.

Fatigue: p50 https://www.nice.org.uk/guidance/GID-NG10091/documents/evidence-review-4

surprise, PW 'expert'. Looks like PEM is being replaced with PESE (post exertional symptom exacerbation) page 49 page 51 https://www.nice.org.uk/guidance/GID-NG10091/documents/evidence-review-4