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Kantor & Kantor and Workwell Foundation to Jointly Offer a CLE Session on Disability Insurance for those with COVID-19 and ME/CFS...

private service: refers to 'chronic fatigue' throughout. https://www.klearminds.com/issues/chronic-fatigue-syndrome-counselling/

https://www.bmj.com/content/373/bmj.n1559/rr-12 eta: "The reason why people with ME/CFS feel angry and let down by the medical establishment stems from the fact that almost all biomedical research until recently has been funded by donations to the charity sector. Almost all government funding...

PGCert EVIDENCE BASED LOW INTENSITY CBT PSYCHOLOGICAL WELLBEING PRACTITIONER https://www.uea.ac.uk/course/postgraduate/pgcert-evidence-based-low-intensity-cbt-psychological-wellbeing-practitioner

glad you got this reply in @rvallee ; the term Post exertional symptom exacerbation is quite well described in the new guidelines. my worry now is if the long covid community start using it before the guidelines are published that its specific meaning, with regards to ME patients, will get...

Merged thread Glasgow MP (Carol Monaghan) moved to safe house after death threat https://www.bbc.co.uk/news/uk-scotland-57614736

Improving Access to Psychological Therapies (IAPT) has potential but is not sufficient: How can it better meet the range of primary care mental health needs? https://bpspsychub.onlinelibrary.wiley.com/doi/10.1111/bjc.12314

Developing an Online Program for Self-Management of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease: Patients’ Needs and Wants Abstract Background Inflammatory bowel disease (IBD) is a lifelong relapsing–remitting condition, characterized by troublesome symptoms including fatigue...

Abstract Background and Objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic condition distinguished by disabling fatigue associated with post-exertional malaise, as well as changes to sleep, autonomic functioning, and cognition. Mind-body interventions (MBIs)...

MS was on the list of 'subjective illnesses' in 1990s by the insurance companies see: https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/

and another one off the back of this: Long covid has reignited polarisation in approaches to treat chronic fatigue syndrome https://www.news-medical.net/news/20210624/Long-covid-has-reignited-polarisation-in-approaches-to-treat-chronic-fatigue-syndrome.aspx eta: and another...

Abstract Background and Objective: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe illness with the hallmark symptom of Post-Exertional Malaise (PEM). Currently, no biomarkers or established diagnostic tests for ME/CFS exist. In Germany, it is estimated that over 300,000...

"In a 2019 survey of more than 2000 ME/CFS patients commissioned by the charity Forward ME,16 most patients reported worse symptoms after GET. In the National Institute for Health and Care Excellence’s recent draft guidelines on ME/CFS2—which considered other research including a separate survey...

Preprint Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic and debilitating disease that is characterized by unexplained physical fatigue unrelieved by rest. Symptoms also include cognitive and sensory dysfunction, sleeping disturbances, orthostatic intolerance...

I think it is generally regarded that this 'variety' of pacing ie APT was adopted by BACME and AfME and the ME/CFS clinics that were set up and includes the idea of baseline, boom and bust, 'pacing-up' etc, completely going against what most ME patients understood as pacing. I wouldn't say it...

https://meassociation.org.uk/2021/06/guest-blog-the-shame/

Rachael Maskell Shadow Minister (Digital, Culture, Media and Sport) To ask the Secretary of State for Health and Social Care, what training is provided (a) in medical schools, (b) for GPs and (c) for hospital doctors on (a) ME and (b) similar conditions. Tweet Share Hansard source (Citation...

This article although not about ME/CFS has been cited in a number of papers: Citations of: Evidence-Based Practice and Psychological Treatments: The Imperatives of Informed Consent https://philarchive.org/citations/BLEEPA https://www.frontiersin.org/articles/10.3389/fpsyg.2016.01170/full