Search results

  1. T

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Thanks very much for this, Natalie and Josh. I have now shared it to some of my social media accounts: https://www.pinterest.ie/pin/174584923043833071 and some mailing lists
  2. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    "COVID-19’s Long-Term Effects Raise the Stakes of the Game" https://humanevents.com/2020/07/22/covid-19s-long-term-effects-raise-the-stakes-of-the-game/ That discussion of ME/CFS is not particularly in-depth but thought the article might be worth a mention.
  3. T

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Nice to hear. That paper took a lot of work. Anyone who wants to read, it's available here: https://www.iacfsme.org/assets/Reporting-of-Harms-Associated-with-GET-and-CBT-in-ME-CFS.pdf
  4. T

    August 21, 2020 IACFS/ME Virtual Conference

    IACFS/ME August 21, 2020 Virtual Conference Schedule https://iacfsme.memberclicks.net/iacfs-me-2020-virtual-conference-schedule-2
  5. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ‘It’s soul-destroying’ — Dublin GP says requests for COVID tests have returned to March levels <https://extra.ie/2020/07/17/news/irish-news/covid-test-requests-rise> --- ---
  6. T

    August 21, 2020 IACFS/ME Virtual Conference

    Registration is now open for the IACFS/ME 2020 Virtual Conference - Friday, August 21, 2020 10 AM to 3:30 PM Eastern Daylight Time (EDT, New York City, USA) <https://www.iacfsme.org/august-21-2020-virutal-conference> "We plan to record the meeting so people unable to attend live may watch it...
  7. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There is this HSE working group: http://meadvocatesireland.blogspot.com/2019/05/update-on-hse-working-group-on-me.html
  8. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Frustrating comments about post viral syndrome on Irish national radio <https://www.rte.ie/radio1/today-with-sarah-mcinerney/programmes/2020/0713/1152998-today-with-sarah-mcinerney-monday-13-july-2020/?clipid=103450795#103450795> --- 17:33 Dr.Hadi Manji: So no warnings about the risks from...
  9. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Recording of Sunshine 106.8 FM interview 19-minute interview. Listen back at <https://www.sunshineradio.ie/podcasts/saturday-live-with-carol-dooley/episode/covid-19-and-chronic-fatigue-syndrome/> Sarah O'Connell discussed a potential link between Covid-19 and Postviral Fatigue Syndrome/ME/CFS
  10. T

    A general thread on the PACE trial!

    I wasn't sure where to post this:
  11. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    No new news in this tweet of mine, but it appears to be fairly popular:
  12. T

    Looking for a copy of Report from the National Task Force on Chronic Fatigue Syndrome , 1994.

    Cheers. I should say though I didn't do any work on scanning or anything like that. I'm not sure who did. I think that Marc-Alexander Fluks has done some sort of work like that over the years.
  13. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    "Coronavirus and ME: 'I had Covid-19 months ago, but its ghost still haunts me' After contracting Covid-19 in February, Helen Kirwan-Taylor felt the return of some unwelcome symptoms" Need to register to read...
  14. T

    US podcast, On Point. - "Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality"

    Transcript: https://riahsweirdjourney.com/2020/06/29/lingering-symptoms-long-term-damage-for-some-its-a-covid-19-recovery-reality-transcript/
  15. T

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    (The Irish Sun) "AT-RISK YOUTH Coronavirus in Ireland – Doc warns young people are not immune from chronic fatigue syndrome after catching Covid-19" https://www.thesun.ie/news/5580346/coronavirus-ireland-doc-young-chronic-fatigue-syndrome/ Variously mentions "chronic fatigue syndrome", "chronic...
Back
Top Bottom