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  1. Sean

    A general thread on the PACE trial!

    Come on down, Lord Winston.
  2. Sean

    UK Parliamentary debate today - Thursday 24th January 2019

    Over to you, Sir Simon... . . . . . . . . . . . *crickets*
  3. Sean

    Self-Compassion and Adherence in Five Medical Samples: the Role of Stress, 2018, Sirois and Hirsch

    Bastard bolshie patients. :p And sometimes literal physical self-preservation.
  4. Sean

    METRIC (UK) Royal College of GPs' online course on ME/CFS

    One could be excused for thinking that nothing fundamental has changed in the UK, and being more than a little annoyed and disheartened by it. :grumpy:
  5. Sean

    UK Parliamentary debate today - Thursday 24th January 2019

    MEsplaining: when an 'expert explains' ME, and how to live with it, to somebody already living with it.
  6. Sean

    David F Marks: Psychology - Science or Delusion?

    That paper is irrefutable proof that they were way ahead of the evidence from the start. And PACE is irrefutable proof that were never had any intention of paying attention to the evidence.
  7. Sean

    David Tuller: Trial By Error: My Six-Month Review

    I think you misspelled 'decade'. :D ;) More seriously, have you considered pulling together all your work on this into a book, summarising the whole show into a more readable narrative for the average person not informed of the story, including a bit of the history, and its broader impacts...
  8. Sean

    Treating medically unexplained physical symptoms: Effective interventions are available (1997) Sharpe & Mayou

    Games with words. Sophistry. They are so good at it that they fooled themselves.
  9. Sean

    Treating medically unexplained physical symptoms: Effective interventions are available (1997) Sharpe & Mayou

    Suggested by who, is the first question to ask here. If one were to ask what is the most likely outcome of mistreating a group of people in the way we have been mistreated, and for 3 decades, it would be exactly the situation we have before us today.
  10. Sean

    Central sensitization: a matter of concern

    Newer version available: https://f1000research.com/articles/7-1325/v2
  11. Sean

    School Functioning in Adolescents With Chronic Fatigue Syndrome, 2018, Knight et al

    Either physically attend, with sufficient cognitive function to engage productively. Or sufficient cognitive function to engage productively while working from home. Definitely this. My capacity to learn and remember fell dramatically when I got sick.
  12. Sean

    David Tuller: Trial By Error: Carol Monaghan Scores Another Parliamentary Debate

    Big thanks to those who helped the MPs and their staff come up to speed on this very technically and politically difficult area.
  13. Sean

    NICE Annual Conference 2019: "Transforming care"

    Yeah, I noticed that too.
  14. Sean

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Depends where you sit in the power tree. We are down near the bottom, without the luxury of protection by powerful patrons, so our scientific case has to be rock solid. It is an extremely serious allegation-by-association against our reputations.
  15. Sean

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    What Robert 1973 and Trish said pretty much covers my view, plus a few points from others. In particular: At this point in time the video remains untested evidence. We don't know its provenance and context. Were all reasonable steps (including forensics) taken to identify the source of the...
  16. Sean

    News from Belgium

    Well I wonder whose fault that is?
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