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  1. Sean

    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    I think that is what is known as a confluence of mutually beneficial interests. The psychs want power and prestige, and the pollies and bean counters want plausible deniability.
  2. Sean

    Reduced glycolytic reserve in isolated natural killer cells from ME/CFS patients: A preliminary investigation, Nguyen et al, 2018

    I think the goings on in the extra-cellular matrix will tell us a lot, possibly including mechanically too.
  3. Sean

    ME advocates you can endorse (=vote for) in the WegoHealth awards 2018

    As always, I endorse this Tom. :thumbup:
  4. Sean

    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    There it is. Exposed for all to see on the formal government record. And I thought it was medically unexplained symptoms (plural)?
  5. Sean

    Documents from the SMILE trial

    That is one of the main defining features and tactics of a cult.
  6. Sean

    Submission to the Scottish Parliament by Jonathan Edwards

    I used to think editors and critics were failed practitioners. But as I got older and more exposed to the wider world, I realised the good ones really do help understand and advance things. The key word here being 'good'. Lots of crap ones around. Permission denied. Stay on board, sailor. :thumbup:
  7. Sean

    Stamina levels before ME/CFS?

    Should say that despite leading an active life pre-ME, I was always one of those who needs their sleep. I never did well without a good 8 hours every night even at my physical peak. Two late nights in a row and I felt it.
  8. Sean

    Columbia University: Insights from Metabolites Get Us Closer to a Test for Chronic Fatigue Syndrome

    What we need is a means to do that test in vitro, with a tissue sample. So the whole organism doesn't have to go through the trauma.
  9. Sean

    David Tuller: Trial By Error: Do All Clinical Trial Experts Love PACE?

    Sharpe and his backers are (apparently) clinical trial experts, yet still fucked PACE right up. Tuller, and hundreds of patient 'activists', have run zero clinical trials, yet still got it right about PACE. Sharpe's argument is not one I would be making if I was him. Especially to...
  10. Sean

    Charities are missing the point – disability benefit assessments were designed to fail

    Feature, not a bug. The cruel and arbitrary nature of it is a deliberate signal to the rest of society that this could happen to them if they don't submit. Exactly the same is happening here in Australia. Government by extortion and intimidation and neglect. All in our best interests, of course.
  11. Sean

    Stamina levels before ME/CFS?

    I was fit and active, played social squash and volleyball 3-4 times a week (had access to free courts). My main transport was a pushbike, 5-10km rides were common and no problem at all. Where I live has a very good bike path network, and I used to do a long ride most weekends just for pleasure...
  12. Sean

    Article by Paul Worthley

    This. In covering your arse, perhaps. But otherwise, fuck off with your hippie new-age bullshit. :grumpy:
  13. Sean

    Michael Sharpe skewered by @JohntheJack on Twitter

    What they said. Not heard that one before. Pretty good. (Though I have never been a fan of the 'malaise' word. Really doesn't have the punch needed.)
  14. Sean

    The proportion of women with central sensitivity syndrome in gynecology outpatient clinics (GOPDs), 2018, Vij et al

    I suspect that under it all, besides the usual egos and careers and incomes, etc, this is the big driver in the establishment resistance to dealing with PACE and similar nonsense. So much of government and private insurance industry policy rests on these claims being true. They are too...
  15. Sean

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    It really is astounding that for decades virtually every institution and process of governance in the UK with any significant responsibility for this issue has persistently and seriously failed, and behaved in such an appallingly incompetent and callous manner. That cannot be pure coincidence...
  16. Sean

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Yes, that chapter of the story has been particularly disappointing. :(
  17. Sean

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Straight propaganda technique. What is disturbing about it is not that it gets used, but that it is so successful for so long. :grumpy:
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