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  1. Sean

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    The most powerful weapon we have against Sharpe et al's filthy smear tactics is for researchers and clinicians not aligned to their views to speak out about their experience with patients. Probably better if they could coordinate and make a single statement with all their signatures on it. That...
  2. Sean

    Objective assessment of diverse types of MS related fatigue and fatiguability

    Same here. Are you right sided? I am. I have sometimes wondered if there is any degree of lateral (left-right) asymmetry in the effects of ME on biomechanics, with the dominant or preferred side being more affected. It is certainly something that could be measured objectively and relatively...
  3. Sean

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Which might be a serious own goal by Sharpe. It might just open her eyes, and swing her against him. We shall see.
  4. Sean

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Sometimes by just not allowing comments at all. Like with this story, for example. Oxford-Brookes report ? As objectionable and angering as Sharpe's comments are, I think he is doing more damage to himself than us. This. :mad::mad::mad: When due diligence rides into town, the mediocre get...
  5. Sean

    New Statesman: How mindfulness privatised a social problem

    As I was saying just the other day...
  6. Sean

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Any health 'professional' who continues to recommend this utter garbage should be held criminally liable for any and all adverse consequences. :mad:
  7. Sean

    REC advice on PACE trial data changed in favour of release

    I am willing to publicly accuse the PACE Principal Investigators of scientific fraud in their handling of actimeters. The trial meeting notes (obtained via FOI) have shown that they clearly wanted to avoid using that objective measure at outcome because they had learned since the start of the...
  8. Sean

    The HANDI Working Group

    Any hype you can hype I can hype higher, I can hype any hype higher than you. :emoji_microphone:
  9. Sean

    The HANDI Working Group

    The backlash against reductionist psychopharmacology, while understandable, and perhaps even necessary in part, has clearly gone way too far. It is deep into cult territory now, and doing serious damage across the health system and society. If the psycho-social advocates were serious about that...
  10. Sean

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    Thanks for this, Tom. Makes it easier to find people to vote for. :thumbup:
  11. Sean

    Open Analysis of Post-exertional Malaise Using a Two-day CPET in People With ME/CFS

    PEM being taken seriously is one of our biggest wins. :thumbup:
  12. Sean

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    As usual, the comedians were there first (relevant bit is from 20:40-21:58, but the whole episode is good):
  13. Sean

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    "That is what we have been doing for decades when we reject a biomarker because it does not detect a DSM category." Whole problem in a nutshell. Trying to force real round pegs into imaginary square holes, then blaming the peg when it doesn't fit.
  14. Sean

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    I suspect that the senior people in the pysch world understand the problem very well, but just can't face the consequences of admitting it.
  15. Sean

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    I'd like to see PEM studies on basic motor-sensory stuff like balance and gait, hand-eye co-ord, etc.
  16. Sean

    Cognitive Behavioral Therapy "Evidence-Base" Is Exaggerated (Psychology Today)

    I'd love to see a solid clinical trial (using both subjective and objective outcomes) that compared CBT with simply providing patients with adequate material support, and otherwise getting off their backs.
  17. Sean

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Previously posted evidence that Wessely understands the critical importance of blinding, and thus knows exactly the perversion of science he is indulging in to protect both his empire and his own arse. https://www.s4me.info/threads/wessely-and-double-blinding.8342/#post-146820
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