Oh, I don't trust them. That ship sailed and sunk a long time ago, in very deep water. (Somewhere near the good ship PACE, I believe.)
Just think that a combination of carrot and stick usually works best.
Don't get me wrong. I am enjoying the stick part. They earned it. :jimlad:
They would have been screaming it from the rooftops, and rightly so.
Instead they have had to downplay or ignore the lack of support from objective results.
'Definitive', one might even say. :whistle:
We do need to be careful about jumping the gun, and alienating people who are or could be on our side (or at least not hostile to us).
Sometimes (sometimes) it really is just a relatively slow system working through the issue.
Nice work. Thanks.
PACE also showed that neither CBT nor GET increased workforce participation or reduced the receipt of benefits (social security/insurance).
If we could demonstrate significant bias in the grant review process, and that it comes from the psych/BPS crowd, that would be a big win.
Also more ammo for wider debate about the lack of transparency and accountability in the peer review process.
Especially the type of CBT and GET they are 'offering'.
Exactly. If they can't predict responders from non-responders then they have no understanding at all, and are just taking random potshots and hoping something hits whatever target they think they are aiming at.
Had minor surgery almost a year ago to open up the nasal passage. Doctors said it can take up to a year for everything to fully settle down structurally, and for normal sensations to return to the nose.
If that is true for minor surgery, then it is true for more major surgery.
Dear patients in the USA
If you only ever contact your political representative about ME/CFS once in your life, this is the one to make the effort on.
Thank you
Signed
Non-USA patient.
:thumbup: :hug:
Have you ever seen a 3 month old baby, too young to be fully vaccinated yet, slowly dying over weeks from whooping cough (pertussis), just worn down by the sheer effort of endless body-wrenching spasms of coughing? It's a particularly horrible and distressing death.
Imagine that scene played...
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