I stopped eating sugar in 2018. Fruit juice and dried fruit were banned. Fresh fruit was allowed. Processed foods were banned if they contained sugar, honey, molasses, or anything suffixed -ose. Bread and pasta was required to be wholemeal. Rules were relaxed slightly for restaurants and other...
Is it normal to state that ME/CFS is a post-viral condition with such certainty? If so, is it justified?
I became ill after (I think) overdoing the cardio rehab exercise after a heart attack. Someone on a different forum developed ME after a bout of malaria, which is bacterial rather than...
The CEO had her card marked a few years back for pointing out that the PM’s comments about letterboxes and burkas were spectacularly ill-judged, and then was forced out last year for, of all things, breaching Covid regs by visiting her holiday cottage in Wales (although not, funnily enough...
i hadn’t realised. Should google first and post later, really. Crip time in particular seems to be an established thing.
Not mad keen on it, but then I’m only an ambulatory user of mobility aids. I’ve seen in other contexts that semi-detached community members can feel squeamish about...
. We move in chronic illness time, or what some refer to as 'crip time'.
That’s rather, um, robust language reclamation for an organisation hoping to be the single voice for a wide range of patient groups.
London Borough of Mordor has replied surprisingly quickly to a blue badge application, and promises a telephone interview with an outfit called Dependability at a random point in the next 28 days. Has anyone else had one of these and know what they will be asking? Presumably this firm is heavily...
Anger on social media is a much broader problem. That’s being addressed by algorithmic nudges from platforms to either ask posters to reconsider, or to restrict the surfacing and promotion of angry content. Those techniques are often ineffective but are improving fast. Longer term, social...
A long while ago I was wheeling a toddler around an oriental food court and retail complex in northwest London. She was recovering from chicken pox and was heavily pock-marked. Passing a traditional chinese medicine shop, I decided to pop in for my own amusement and test out a school of practice...
What’s the etiquette on this forum regarding expressions of scepticism towards, well, pretty much everything in the above? Presumably it’s not being posted just so that it can be mocked.
Being able to work as an indication of severity is skewed by WFH becoming the norm. There must be quite a few people who are housebound and just about holding down a job. Whether it’s a good idea to do so is moot.
I’d be much more interested in whether psychoactives could do something about pain and hypersensitivity. As @Peter Trewhitt says, masking fatigue is a terrible idea. Masking the constant low-level toxic sensory fizz would be brilliant, though, and a disassociative drug would make marginally as...
Yeah, it’s essentially a letter, and there may well be a special term, but it’s definitely not an editorial.
Wasn’t it the ME Association twitter which was praising a pwME the other day for pushing herself through a daily half mile hike? If not, apologies to their socials team, but if so, this...
That’s a really poor Twitter gaffe at a time when it would have been very helpful for their response to have been retweeted far and wide. Not impressive.
That’s interesting. Is that how the Lancet works? Or will they print anything that meets Horton’s editorial standards and happens to have been submitted?
Clearly Horton comes out of this badly, as he so often does, but I don’t know if this correctly characterises the editorial process. It might...
Once is happenstance, twice is coincidence and thrice is enemy action, as a Bond villain once said. If Trudie Chalder gets a guest opinion slot in tomorrow’s Grauniad, I’ll start to worry.
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