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  1. Shadrach Loom

    Lancet: Where are the long COVID trials?

    The editor in chief of LID is Ursula Hofer. Although she has been working in medical publishing for a while, she qualified as a doctor in Berne and practised as a clinical immunologist at University Hospital Zurich while engaged on doctoral infectious diseases research. Brief industry stint...
  2. Shadrach Loom

    Lancet: Where are the long COVID trials?

    Importantly, this is an editorial: it’s the Lancet Infectious Diseases editor speaking ex cathedra, rather than a personal view from a researcher or clinician. The job of an editorial is not to challenge the preconceptions of the readership, but to bolster and refine them. So it’s refreshing and...
  3. Shadrach Loom

    Ed Yong Articles on Long Covid & ME/CFS

    It’s paywalled for those of us who have previously overindulged in Atlantic content. Depaywalled link here: https://archive.ph/sBL8T Great article.
  4. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I recall the right wing pundit Darren Grimes threatening action over a widely circulated story that he had been nicknamed “crafty wank” at school after being caught indulging in onanism under his desk. So I should still make it clear that the editors involved are only figuratively wankers.
  5. Shadrach Loom

    Thesis The association between pain catastrophizing and chronic fatigue in the general population: the HUNT pain study, 2023, Schjetne

    Well, I hope there is an erasure provision under GDPR. If anything deserves to be forgotten, it is juvenilia.
  6. Shadrach Loom

    Thesis The association between pain catastrophizing and chronic fatigue in the general population: the HUNT pain study, 2023, Schjetne

    Masters level work shouldn’t be published any more than undergraduate essays are. It’s a passport to doctoral research, not a purported contribution to human understanding, and of course it looks woefully threadbare to anyone with a longstanding interest in the subject at hand. I would...
  7. Shadrach Loom

    What It’s Like to Live With a Tick-Borne Disease, NYT

    Natalie has pinned her most egregious article at the top of her Twitter feed. Criticise a journalist, and the thin-skinned creatures turn into fully fledged anti-patient activists.
  8. Shadrach Loom

    Scientists have identified gene shift which enabled ancestors to walk upright

    Walking upright is all very well for spotting lions on the savannah and freeing one’s front paws to throw sticks at them, but it is murder on the lower back. We’d have been much better off on a different evolutionary path, distributing our weight sensibly across all our limbs, and brachiating to...
  9. Shadrach Loom

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Although I bet that you and I and countless other lapsed users are counted in that 30,000. Note the careful “have been using” in the press release. Is anyone else on here still using it?
  10. Shadrach Loom

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Oh, fair enough. It took me less time to bail, largely because I couldn’t see any correlation at all between HRV and symptoms, and the default symptoms (which presumably are the ones Imperial will scrape) didn’t describe what I wanted to record.
  11. Shadrach Loom

    News from Germany

    Hmmm. 80% is four fifths, so quattuor quinquae. Decimatio is the killing of every tenth man, while centesimatio is the killing of each hundredth man, a less brutal punishment for collective failure, so it’s the ordinal (decim, centesim) plus atio, indicating action. But fractions don’t really...
  12. Shadrach Loom

    Womens Health article: Feeling totally depleted? Here's the 10 signs that you're exhausted

    Not sure if you are serious, but the writer exists and cites Women’s Health as an employer. https://emma-pritchard.com/ She’s pretty vulnerable to algorithmic competition, I’ll grant you.
  13. Shadrach Loom

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Moved post responding to a now deleted post that linked this tweet: Depressing that the Visible lot have focused on exploiting their data rather than looking at ways to improve it.
  14. Shadrach Loom

    Improving images used to depict ME/CFS

    The women from photo libraries used by lazy picture editors to illustrate ME have now moved on to demonstrating insurance cost rises. https://www.bbc.co.uk/news/uk-wales-66236110
  15. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    The Tring lake glitters in the bed of what must have once been a quarry, surrounded by steep banks of wildflowers attended by bees. The walking (and scootering) track circles the quarry’s rim. Plenty of waterfowl were on display: the large ones were recognisably swans, the moderately-sized ones...
  16. Shadrach Loom

    Lilly says Alzheimer's drug slows clinical decline in mid-stage trial

    Hardly a “scam”, although the PR campaign is pretty transparent. I imagine that every iARDS point cashes out as competencies and signs of engagement that would feel very meaningful to a person with Alzheimers and to their family. I’m not familiar with the scale, but I’ve definitely seen the...
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