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A documentary on long covid would have more legs. Better currency. Much more chance of finding afflicted celebrities - and hopefully doctors - who would crawl upstairs or don eyeshades for the cameras. ME’s BPS and PACE scandals would clearly be relevant, and could be covered off in five...

Commiserations. Do you have all the resources you need to appeal? It sounds like a very difficult situation and maybe a members only thread would allow the hive mind to offer support?

It’s the profession of psychology itself, in all its forms, which benefits. Clinical psychology, psychology in industry, secondary and tertiary education in psychology, psychological medicine: collectively, these are vast industries. And wherever psychology operates, it is pretty useless, and...

It’s essentially prayer, isn’t it? Just with a secular hat on and a better monetisation model than collection plates.

People with back pain must be getting quite irritated about this as well.

Yes, I hope that they manage to recruit enough participants - and that they use appropriate criteria . . .

There are a couple of lurid deaths and some casual brutality, sexual violence does feature, but is implied rather than being described in detail. The narration is male first person throughout, and Copperhead is as decent a chap as Copperfield, which hopefully reduces the chances of any scenes...

I just finished, and would highly recommend, Demon Copperhead, Barbara Kingsolver’s retelling of David Copperfield, which is set in the opiate-blighted former mining communities of West Virginia. A Purdue rep has a small villainous role. It’s astonishing what US pharma companies can get away with.

Good to see a plug for Decode ME in issue one of the National Institute for Health and Care Research’s email Research Roundup. They say:

That’s important, and revealing. I’d assumed that medics didn’t follow the twist and turns of false hope. My default position on anyone trying to get the bottom of ME has been tolerance - even at Prusty levels of parturient montes, nascetur ridiculus mus - but you make a good case for not...

It’s difficult to unpack this without skirting dangerously close to discussing politics, but I think that what you say would be absolutely true of, say, the Times, Telegraph or Mail, or even of Conservative Home. But there tend to be all sorts of views on social protection at the conspiraloon...

In happier days, a magazine called Conservative Woman would be asking Rishi about his favourite cakes, and offering tips for making bunting out of discarded frocks.

It’s pretty much alt-right. They love an establishment-bashing conspiracy theory as much as the Canary does. Far more useful to get a more nuanced, but still damning, piece on Wesseley into something serious and respectable, like the FT or the Economist. I see no good in lining up anti-BPS...

Really pleased to be invited under the new guidelines, especially as I suspect the dealbreaker last time was a diagnosis of adrenal insufficiency which turned out to be a fleeting postoperative effect. I suppose there’s no way of amending answers and it’s probably not best practice to allow...

I’ve never has much time for the cult of the front line. In any walk of life, practitioners are hopeless at running operations at scale. You hark back to the good old days of “just getting on with it” when clinical eminence and decision-making was unchallenged. But that’s precisely the culture...

Useful blog post here by one of the authors, which succinctly reinforces the important points about exactly where any additional funding should best be directed. https://samf.substack.com/p/how-bad-does-it-need-to-get

Like anyone else with a UK motorbike license, I associate CBT with Compulsory Basic Training, but it’s still easy to read S4ME threads without worrying about pwME being forced to navigate traffic cones on 100cc Yamahas. The risk of confusion between biopsychosocial and the British Psychological...

Dumfries and Galloway?

Leaving the medical stuff to those who understand it, but the description of the illness is certainly bang on, and one word in this line stands out for me: Some people remain able to fulfill their main responsibilities at work and at home, although hobbled. “Hobbled” nails it.

It’s theoretically ambiguous but not practically so: who would seek or retain an ME/CFS diagnosis once diagnosed with MS?