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Yes, she did. It was mentioned by Janet Dafoe on Twitter. If I'm not mistaken, Jen Brea is also at the Dr B presentation

Exactly, the "trifecta" relates to EDS, why does this have any relevance to ME? You have previously stated that EDS, CCI, Fibro, MCAS, ME have overlapping symptoms. Which ME symptoms are not covered by another diagnosis. I'm guessing the answer is PEM, which is very subjective and open to...

I didn't read @Mij as suggesting that vEDS or CCI or MCAS was a designer diagnosis, but rather that the endless strings of multiple diagnoses seems to be a current trend. I am curious as to which ME symptoms are not included in their other diagnois, be it EDS or CCI or MCAS, thus making an ME...

I recognise Ben Lake (Plaid Cymru - Ceredigion) and Kerry Mcarthy (Labour - Bristol East). Both were involved in previous debates (Westminster Hall and Common's)

It is a poor choice of headline, largely because it distracts from the content of the article. It is about medicine's dismissive attitude to illnesses predominately affecting women, that women are seen as unreliable witnesses to their own health, and their symptoms are more likely to be...

I had muscle biopsies approx 10 years ago (had been diagnosed for 18 years by this time). First was a needle biopsy, which showed abnormalities suggesting a glycogen storage disorder. Second full biopsy (other leg) to establish which GSD, apparently didn't show anything significant. It was a...

It is quite a difficult question to answer succinctly. I do get colds less often. Although I am exposed to less viruses due to lack of contact with others, I have been in contact with family members with colds and not contracted it. I did have a marked improvement as in less ME symptoms...

I also have concerns about any possible ability to fake this test, for pwme to be accused of faking or not trying hard enough. Also as to whether it could be interpreted as deconditioning.

Hope 4 ME and Fibro N. Ireland Facebook page

Psychologist Jo Daniels was listed as supervisor on The Shopping Bag Trial. https://www.s4me.info/threads/not-a-recommendation-bath-university-volunteer-for-research-investigating-chronic-fatigue-syndrome.3746/...