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There are so many threads I want to read at the moment and I'm not sure where to put this. I have done more reading and scrolling this last week than I usually would on the forum. The last two days my ME has been warning me to cut back, nausea, beginnings of the vertigo-like symptoms...

I just edited my last post on page 4 of this thread. I had used ' real trouble with the brain' which I should not have used. I have deleted it from the post. I couldn't find the expression I wanted at the time. This is something I have to be careful with and try to sit for a while with my posts...

Yes, in my severer years I called these 'good hours' breathers. I would gather all the inner strength, mental grit that I could to help get through the next barrage of symptoms. In those years that barrage of symptoms were layered, some coming on top of each other, odd ones leaving, new ones...

@Trish I have been thinking about fatiguability for a few days and questioning why I have a resistance to that description. I need to sit with it for longer. It may be that I have described fatiguability as unusual exhaustion all these years.

This is another good example of level variation that I have experienced.

This is important for those of us who have had ME a very long time. Over a 30 year period I went from mild to very severe then severe to moderate and now I think I am a mild-moderate ME. The variations are interesting along the levels. I really need to write each level down and how the ME was...

Yes. Very much so. I like the way you were able to entwine that whole dynamic.

I think you could be right to separate this. I need to think more on it and remember my experiences. These sensory challenges make a ME person sick/er but I am not sure whether they should be described as a PEM inducer, more bringing on brain irritability and other symptoms of weakness, nausea...

Yes, same here @Peter Trewhitt and @Midnattsol My experience as well. I just hope we don't over-complicate with a lot of terms describing what is and isn't PEM. I think in milder to a mild-moderate ME it would be easier to determine fatigue, unusual exhaustion and a bout of PEM but as the ME...

Thanks @Trish I'm having trouble with understanding 'contingent' as in symptom contingent. It may be that I am thicker than most people? I have looked up the meaning and I need to read it as subject to symptoms or depending on what symptoms one has at the time?

Can we have a glossary of words/terms for ME that the ME community prefers? I sometimes use terms like 'resting routine', 'managing the ME', and often wonder whether I should be using 'pacing' instead. I don't know if anyone has mentioned this yet.

In my severer years I experienced the tremors (felt like adrenaline) when I had done too much. It was a non visible tremor that was unpleasant. I could not drink a cup of coffee without feeling it. Now, 20 years later I can drink two coffees in one day and be ok. Two coffees are rare though. I...

I like ME/CFS Research Skeptic. Edit: I see @wingate mentioned this on page 2 of this thread. I think this is a good name and is more explanatory.

@ME/CFS Skeptic when I first saw your name on the forum I remember being curious to know more about you and your thinking on ME and why you had chosen your name. Unfortunately, I am quite severely affected cognitively so I drift without following up on detail a lot, needing to be careful not to...

I'd just to record some things that I did differently when I found out I had Covid. The first week of Covid I thought my sinuses were playing up, but when I began sneezing with a runny nose I tested. So at this point I made some changes. I will record them here for future reference in case I...

The last couple of days I have noticed that my mental clarity is returning back to the ME brain. During Covid I was able to think more easily. Food preparation was good because I was able to gather my thoughts together well to look after myself properly. Now, the last couple of days I feel like...

I tested negative today for Covid. I'm still stuffy in the nose with a wee bit of drainage from the sinuses, but that feels like it is trying to get rid of the tail end of Covid. My lungs are still a bit inflamed but able to breathe ok. I have the Covid cough. I haven't had to take the...

What is happening here in connection with ME and a virus where the ME draining of sinuses is from having really overdone and the draining of the sinuses when you have a cold virus. What is the difference, or how are they connected to cause the sinuses to drain for two different reasons.

How far along are you with the Covid @poetinsf ? I can't quite work out whether I am going to develop a chest infection or just have this inflamed asthma like feeling.

I think I am at the stage now where I could start having breathing problems. I can feel that my chest has some inflammation. I don't know whether to take ibuprofen for this or not. I am taking panadol. I have started to cough some stuff up. I have to decide when I should start the antibiotic's...