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One of the London universities (can't remember which one) did a study into the use of this drug for ME about 6 years ago I seem to recall. I don't know if the study was completed or what the results were.

I watched the video the other day, I think everyone's doing a great job of making the process clear and understandable. I really appreciate these webinars and the work that goes into making them. I was also really pleased to see how they are listening to pwme so closely in terms of study design...

I found it was very similar in teaching. Every new government/Ed sec wants to radically overhaul things but they just shift things around and it rarely helps at all. The regular changes are just another burden teachers have to absorb before getting on with the actual work of educating children.

I really feel for her and getting it a second time too - such bad luck. In the article she says, 'Several people got in touch to tell me I would never get better. That I needed to accept my position was permanent.' I saw some people saying this to her on twitter after her first article came...

I just read this, came here to find out what people on here think. I don't know enough to know if this is likely to be a useful test or not.

Love that comment, so true.

Do we have any idea yet whether the vaccine reduces the chances of long covid? As in, if you catch covid after being vaccinated, are you less likely to get long covid? I guess it's too early to know but wondering if there are any thoughts about this? Do we know of anyone who was vaccinated...

Absolutely awful. What a horrific experience it must have been for her. What has the world come to? Social media has to be changed to prevent people doing this kind of thing anonymously and sentences for offenders should reflect the effect that this kind of behaviour will have on democracy. What...

You're right. Plus it's probably an opinion a lot of people WANT to believe because it gives them a feeling of safety - 'it wouldn't happen to me because I'd think positively and be okay'. It's a seductive story.

Yeah, I listened, it was quite infuriating. Hard to tell what other listeners without our insight might have made of it. To me, it sounded very much like just another anecdotal story and the absence of any evidence to support his claims was obvious. The interviewer did suggest that people who...

@Mij @Sean Thank you. I've actually just managed to get through to the surgery and found that I will definitely be having AZ as my second. I think that's policy here. Maybe I'll get an mRNA option if I get a third in the future! I'm glad to stick to AZ now though because I feel reassured by the...

Does anyone have experience of mixing and matching vaccine types? I had my first jab two months ago and just booked my second for next week. My first was AZ and I had only minor side effects. Because of this I'm hoping second will be AZ too. But I've no way of knowing. It could be Pz. (I'm in...

I was the same with my first jab. I prepared food etc and rested up in advance just in case but actually it turned out much better than I thought! Only one rough night and I was back to baseline which was such a relief. My body was clearly not listening to my thoughts about worst case scenario!

Brilliant news, he's done a fab job. I also enjoyed his last book (I'm reading it very, very, slowly!)

Also it makes it seem potentially fixable - 'if I can fix/process the trauma, the pain will go away'. I think that's probably the most seductive reason to embrace it.

I strongly agree with every bit of this.

That's absolutely appalling. She wasn't qualified to be asking you such intrusive and potentially triggering questions without any warning. Like you say, what would she have done if you said yes? Very worrying. I'm sorry that you went through that awful situation.

Just an update on my vaccine experience - I posted here a while ago not sure if I should get it or not. I send the ME Ass letter to my GP. Had a text from him the next day saying he'd added me to group 6. Another text two days later telling me I could book my vaccine. I had Astra Zenica. The jab...

Good points. The thread is here https://www.s4me.info/threads/book-the-body-keeps-the-score-bps-type-rubbish.16299/#post-280866 The book is called 'The body keeps the score'.

I've been told similar. After believing it for a couple of years and going along with that narrative, I no longer find it helpful. I actually really resent the 'your body remembers' language. I think it's really dangerous - it feel like being told that the trauma is still in you when actually...