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Oh dear God, it really is bad. "The Peak District's quite hilly isn't it?" :banghead:

I think it's the 'immune system response does not settle down - cytokines' bit that's a hypothesis?

I can see your point about the importance of emphasising this is based on a hypothesis but I actually do find it quite helpful as a graphic.

True. But then again, pwLC are affected to varying degrees and their condition might have fluctuated since initial infection so I can see some parallels with my position when I was diagnosed (even though I was gradual onset). I think in some ways pacing can be more complicated when you have...

I wonder if perhaps there is a bit of a difference between the experience of sudden onset/ gradual onset. I was gradual onset. For me, even once I was diagnosed it was very, very confusing trying to work out what my body could/couldn't manage and how to structure my life around this. I...

100% agree. The things that you've listed here Trish are imperative in my opinion and can make the world of a difference. Taking pacing as an example, it's very hard to explain to someone who's not had to do it how hard it actually is. I needed professional help to teach me how to do it and I...

Brilliant letter. Thank you.

Eh? This is just weird. Who knows, there may be an association between types of trauma and some kinds of health problems (maybe) but I'm 100% sure it doesn't work like this. What next, problems with your mum's best friend causes x whilst problems with great aunt's boyfriend causes y? Also, are...

Sorry, I should probably know this, but what are the 2HLA risk alleles?

I use Twilight on my android, I don't know if it's available for apple.

So thoughts don't cause the physical symptoms but emotions do. (Fear is an emotion.) But thoughts are intrinsically linked to emotions - thoughts can cause emotions, emotions can give rise to thoughts - so the distinction is not clear.

I don't think we should allow the debate about how ME is treated to be tied up with the debate about whether psychological factors can influence physical health. For a start, we're clearly not all in agreement about the latter. But also, I think we're going to lose if part of our argument is...

@Esther12 I think that's a useful note of caution. There may certainly be some people whose LC is anxiety related but it feels like Sharpe is too willing to make that assumption before the evidence is there.

George Monbiot is renewing my faith in humanity. Again. :):):party:

I think the problem is that it shouldn't be down to other patients to break the news to new sufferers that the illness can be long-term. This kind of information should be delivered by qualified people in a sensitive way (as I imagine happens with MS). Support groups can then come in and provide...

Thanks for replying and I hope your symptoms ease soon. I've not had any vaccinations since I got ME. I'm not in a high risk group but my concern is not that I would get severe covid but that any level of covid would worsen my ME long-term. I feel there's less risk for me getting the vaccine...

Exactly this! I couldn't agree more.

I'm in my late thirties so haven't been called to be vaccinated yet. I've been umming and ahhing about contacting my GP and asking if I can have the vaccine due to my ME (I would send him the ME Association letter). I've been housebound for about 6 years and just about manage the basics. I'm a...

Voted!

I feel similarly. I definitely think that my relative emotional stability now is something that I've built up over the course of many years. I did struggle with the grief of losing so much at the start of my illness. I wonder if the thought process you mention here could be classed as an...