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This is brilliant @PhysiosforME - what good news! Thank you!!

I stumbled upon Alex Howard's new video series on youtube yesterday. I found it really concerning. For background: Alex Howard runs The Optimum Health clinic in London which claims to treat ME. I've don't their '90 day programme' (many years ago). They use various techniques such as the...

That's interesting, I've read that people with Sjogren's have an increased risk of developing non-hodgkin's lymphoma. I believe that they first noticed that cyclophosphamide was having an effect when they treated patients for non-hodgkin's who also had ME and found that the ME improved after the...

I took one tablet of mefloquine (larium) whilst in Asia several months before my gradual onset ME started (about 22 years ago). I started to feel really depressed so I stopped taking it after that one tablet and switched to doxycycline. I've heard really bad things about mefloquine and would...

I thought she spoke SO well about it. The way she talks about daily griefs was really powerful.

I'm glad you feel the same. (At the moment I'm feeling like the whole world is experiencing a lot of what we've been experiencing for a long time and now this seems to include being targeted by people like this!) I really dislike the way he talks about his techniques as equivalent to...

I've just seen on Facebook that Ashok Gupta (of the 'Gupta Process') has released a 'package' called the 10 day coronovirus challenge. He doesn't claim that his techniques (mediation, NLP, neural retraining etc. I think) can prevent you getting the virus in so many words but I think he very much...

They can't know for show that it will need to be cancelled at this point so surely they've still got to publicise and then if it gets cancelled they've still got a list of people signed up and they can either look into alternative ways of presenting or postpone? I guess it would be good to...

This looks good!

I couldn't agree with this more. Also, couldn't attendees interested in unrest just watch it on netflix from the comfort of their own home? So perhaps you could just mention and/or play a clip without having to show the whole thing. Although I second Trish's opinion that Voices from the...

This is a brilliant film, so well made. I second everything that @Trish just said and would try to rephrase it in my own words but too exhausted to do so and Trish said it so well! Just wanted to add my voice to the praise for the film and the science, just in case anyone involved sees this...

The study seems to me to ignore the fact that severity varies between patients, as do the specific symptoms. So surely the women who said they were 'willing' to have sex despite having FM might have been less affected (or affected in different ways) than those who said they were 'unwilling'? I...

These criteria do sound a bit strange but remember: they are designed for people with ANXIETY not ME. People with anxiety often see themselves as needing to reach impossibly high standards imposed on them by others. They develop very black and white thinking around this - ie 'either I achieve...

If we're considering this as a way to monitor and assess ME/CFS patients it makes no sense at all, but the paper refers to anxiety disorders so... for me it makes sense.I think CBT can be really useful for anxiety. I've only ever experienced minor anxiety in the past (eg. around the time of...

Brilliant. Well done @Gary Burgess :emoji_clap::emoji_clap:

Great! Thanks Gary, I look forward to listening :)

@TiredSam Aha! Now I get it and am feeling suitably annoyed, thank you ;) I think first time round I was swayed, despite him sounding arrogant and smug, because I do think that there is a problem with class representation in the media and publishing. Virtually everyone in these industries seems...

Totally agree. I think it makes sense to believe in the scientific method but at the same time be aware that it is probably not going to reveal the ultimate truth of the universe to us any time soon. Personally, I'm ok with not knowing the ultimate truth of the universe, I'm not sure our brains...

Intrigued about why this conversation would irritate you? Personally, Claudia Hammond has me shouting at the radio regularly!

The scientist on the panel argues that science is uncovering eternal truths. The science philosopher and the novelist point out that culture and beliefs will always influence what questions scientists asks and how they interpret the answers.