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I found this discussion on science/culture really interesting... https://iai.tv/video/changing-science?utm_source=Institute+of+Art+and+Ideas&utm_campaign=00aba2c572-Truth%26Universe+IAI+TV+Release_1811271&utm_medium=email&utm_term=0_33593fe9fa-00aba2c572-47080025 It's a live video recording of...

I received the same email. I also used the MEAction template although I did customised the letter a bit. It makes me wonder whether us sending multiple copies of the same letter is helpful or not as a campaign strategy - is it better that they receive a few well written letters from...

THAT is a good idea :thumbup::thumbup:

We discussed the Chrysalis Effect in this thread https://www.s4me.info/threads/not-a-recommendation-uk-chronic-fatigue-syndrome-conference-costs-challenges-and-practice.4773/page-2

I usually like this program but having heard the trailer clip I've marked it out as one to definitely avoid as I know it'd make me feel frustrated and rubbish. I wonder if he questioned her on the ME/CFS part of her book at all. Would be interesting if he did but I don't have high hopes.

Brilliant. Love her. She seems to know what she's talking about on this, she's spot on. I might be tempted to join the women's equality party ... :thumbup::thumbup:

Maybe you're on the wrong forum?

I'm aware of the history of activist movements. In your argument you've equated action with vitriol. They are not the same thing. Of course I believe action is important. But action does not need to be vitriolic. (Vitriol is defined as "bitter criticism or malice.") Like people on the streets...

I personally would not want to be involved in something like this for the reasons that @Jonathan Edwards and @Trish have expressed above. I think I differ from you @Hip in that I don't think it is the militancy and vitriol of patients that has got results so far. I think any progress has been a...

WTDDTY is a weird website full of quackery. I read stuff from them before. They love conspiracy theories. Anything 'alternative' is definitely right and anything mainstream is definitely wrong and they don't look much further than that. I wouldn't waste my time reading anything on that website.

I love him! He seems like a really good person. I can really identify with the way he talks about Buddhism. Also, love his playlist... that Nina Simone song! My fav bit: What advice do you offer to friends when they are feeling overwhelmed? Sometimes when people are truly overwhelmed, I’m...

She's a national treasure - everyone loves her on DIDs. Hope she's ok. Glad she named fibromylagia and not just 'health issues' - all helps to increase awareness. There was also a cyclist in the news yesterday who has been forced to stop and rest after contracting epstein barr virus.. I can't...

This is really good coverage isn't it? A good lesson in how to write for the internet too - short sentences, short paragraphs, giving a personal account of what it's like as simply as possible.

Great article. Her strength and resilience amazes me. What an achievement to have written this book and to follow it up with PR like this :trophy@:trophy@

This study was mentioned on Woman's Hour today in a discussion about gender inequality in health care. The discussion seems to have been prompted by a report from the BMA that has just been released entitled 'Addressing unmet needs in women's health'. The discussion focuses heavily on domestic...

Totally agree. There's absolutely nothing wrong with wanting to extrapolate meaning from the experience of illness. Personally, I do think there is meaning to be found and it will be different for different people. I actually agree with what he wrote, but even if I didn't, so long as he's not...

I listened to this when it was first broadcast. I thought it was really good. Obviously lying down places is not the answer for many with ME as light, sound, movement etc. would still be too much, but it would certainly help some of us, some of the time. I really liked her attitude of getting...

Yes, that's exactly how I see it.

@Amy101 I have even more gratitude and admiration for you as a family now having just read this thread and realising how hard it must have been to get the result that you did and I also understand a bit more about why this is so significant and important. I knew that it must have been (and...

Yes I agree that the headline is a problem. To say 'I meditated away pain' is intensely annoying (both to meditators and to people with pain!) To be fair to him he probably didn't make up the headline himself.