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Why not attribute it to meditation? Just because meditation doesn't 'cure' ME doesn't mean it can't help other people manage different conditions. If the pain is associated with tension in the body (as may have been the case with this person) then doesn't it stand to reason that finding a way to...

Hahaha... Talking about his Dr he says: 'When I told him about meditating, he was quick to reclaim my body for science. "Just because you and I have nervous personalities, it doesn't mean there's nothing wrong with us," he said.' THE EXACT OPPOSITE OF WHAT WE HEAR!! I think that central...

I agree that Wessley will have made sure in advance that this isn't going to be an event where there could be an open discussion about ME. It won't be mentioned. BUT I do think it's interesting that Stephen Fry tweeted about Unrest and I'm pretty sure that he tweeted about ME previously to...

Oh I see, I hadn't though of it that way. You're right.

It's a good article. A few niggles of mine: 1) I'm not sure about the headline: "'Vindication' for woman who wanted ME on her death certificate". I don't imagine she 'wanted' ME on her death certificate but that she wanted the truth on her death certificate. It wasn't just that she 'wanted'...

Thanks for sharing this hear, I'm really pleased to see it. I'm not going to listen right now as I find Merryn's story so heartbreaking, however I am SO SO glad that it is being talked about and immensely grateful to her mother and sister for continuing to speak out, it can't be easy.

This is really helpful. Thank you Dr Shepard. Just wondering - are any of the antimalarials related to this class of antibiotic? I know doxycycline is an antibiotic but don't know if it's related. Probably not - just an idea as I know many get ill after travelling.

Exactly this.

@JenB I've long believed that good research into ME will shed light on other diseases, especially cancer. I think that we could learn a lot about cancer through ME research.

I had this too, I remember going to the doctor's about it and I hardly ever went to the doctor's so it was severe enough that it felt significant, it didn't affect my life at all though. I remember getting extremely tired as a teenager but then that's quite common I think so hard to know...

Hello all, I'm not sure if this is the right place but just a quick question... I really miss going to events and talks. Recently the British Council live streamed a three day literary conference/festival about 'Nature Writing' (which is a love of mine). I watched it live-streamed and it was...

Thank you, I will do.

@Action for M.E. Thank you for your response. I echo @Trish 's sentiment here: I think that it is important to call out these businesses at any opportunity possible. They claim to cure ME, they offer no evidence to back this up and they are staffed by entirely unqualified therapists. Thank...

I think she has recently shown quite a lot of improvement. I wouldn't want to speak for this individual person though, don't know her reasons. @Esther12 's explanation makes a lot of sense to me. I sometimes wonder if places like OHC and TCE have an unofficial policy of spotting people who they...

@Arnie Pye No, sorry I didn't mean to imply that it had been taken without her permission. I think she wrote it for them. I just meant to point out that although people may say that they are recovered (especially if part of the ethos of the program involves very adamantly focusing only on the...

The Chrysalis Effect say on their website: 'It is part of our mission to educate the medical community, which we have been doing over the past year. We have met with several doctors who are able to educate others. In the UK we have met with The Health Minister and head of services for "long...

I joined years ago. I didn't know there was any controversy until I joined this forum. I don't really understand/haven't fully looked into that for myself so still a member. I found their helpline to be useful in the past. I used their information booklet for employers when I was still working...

Are @Action for M.E. really supporting this? I will definitely be questioning my membership if they are. I've already given OHC far too much money for nothing, I don't want to be supporting them in any other way. I was shocked by how unqualified and inneffective the OHC 'practitioners' were...

SHOCKING. I tried the Optimum Health Clinic years ago. The fact that they are presenting on the 'the health scandal of our generation' makes me feel sick. They are part of the scandal. The Chrysalis Effect looks even worse. Elaine Wilkins has absolutely no qualifications, I believe she worked...

Totally agree. This is a really good point, and makes so much sense. I hadn't really thought of it but course you are right. I guess establishing a centre of excellence would be the starting point for developing this sort of model. Are there specialist MS nurses I wonder?