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https://www.bbc.co.uk/news/world-us-canada-68706317 Havana syndrome: Report links mystery illness to Russian intelligence unit

Yes, definitely significant. I think they should have focused on this more in the podcast as it's a pretty clearly established link. Frustrating just to be a bit of a throw away observation. I think for some people it's very clear that GF is the start. But I also wonder if there may others of...

The Guardian science podcast has released an episode today about Epstein Barr Virus entitled The virus that infects almost everyone, and its link to cancer and MS – podcast https://www.theguardian.com/science/series/science There is a brief mention of how EBV 'contributes to some cases of...

I wish all journalists were as good as George Monbiot. Brilliant. He's really taken the time to understand the situation properly (not easy to do).

Glad that you managed to get the extra funding to extend the completion date - well done Decode.

Is this the study: https://www.theguardian.com/society/2024/feb/21/scientists-find-link-between-brain-imbalance-and-chronic-fatigue-syndrome ? A family member just sent it to me.

I suspect this is just a marketing strategy - i.e. there is no 'bursary', the original non discounted price is just an inflated price they never intended to charge, and there are not limited numbers they just want people to buy now for fomo. I think they make money from uninformed, well...

Such a useful resource.

And just to add, my sister is an acupuncturist. I don't know if they were 'ear seeds', but I remember having things stuck to my ears by her in the past. Must have been ear seeds I think. Did nothing.

This segment is really good - a positive to come out of this I think. Dr Arif seems great - informed, sensible and empathetic. I hope we get to hear more from her!

'Buried beneath what I thought was failure, I have instead found a courage that astonishes the adult me.' I have been always been astonished by the clarity and wisdom of Naomi's writing and I think it's always been clear that the person behind the words is remarkably strong, intelligent...

Autism can cause difficulties with proprioception. Are you autistic?

'Special interest group' is very striking isn't it? Says a lot.

Brilliant video, Elinor and Anna did a great job.

Love that you included all those kisses at the end ;)

Brilliant article, thank you @B_V

This is such a good point. It was going that way before the phase 3 results came out. So very glad they did the phase 3. The rituximab thing was such a good learning experience for me in helping me understand the importance of really tight, high quality trials (I don't have a science...

In the independent article, Chris Ponting says: “ME/CFS is a devastating disease affecting a UK population the size of Derby.' - I've not heard that before, strikes me as a good way of visualising the number of people affected.

I just listened to Wednesday's episode of Woman's Hour: https://www.bbc.co.uk/sounds/play/m001pmkp Martine McCutcheon was on to talk about menopause but the interviewer was keen to talk to her about her ME/CFS. The interviewer, Nuala McGovern, also brought up, of her own accord, the new govm't...

It took me years of living with this illness and a lot of time reading and watching events in the ME world to even get close to being able to articulate what's wrong with the psychiatric framing of ME. I hope the authors spoke to a a large number of patients and all the charities in writing this...