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Heterogeneity in Measures of Illness among Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Not Explained by Clinical Practice: A Study in Seven U.S. Specialty Clinics Elizabeth R. Unger on behalf of the MCAM Study Group Jin-Mann S. Lin 1, Yang Chen 1, Monica E. Cornelius 1...

I was expecting headlines along the lines of "NIH Study proves Chronic Fatigue is Real" and still am, but the NY Times headline on this took a somewhat different approach. https://www.nytimes.com/2024/02/21/health/chronic-fatigue-syndrome-long-covid.html Not shocked.

Sure, but unfortunately it's been tried & as far as I'm aware nobody ever got a response. I remember when that box first popped up, about 9 years ago. Whether coincidentally or not it was right around the same time the IOM report was released, the same week, actually, if I recall. I spoke with...

Hardly surprising. A few years ago, Blanchflower, now banned from X/Twitter, went on a sustained pro-PACE troll spree that was unique in its length and blind stubbornness. Numerous attempts were made to provide him with the literature that had subsequently led to the downgrading of PACE, but...

Posts moved from: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian ______________ This is a first. Nature just published a review of exercise interventions in chronic conditions, from a group in Newcastle, looks...

I know I've seen the name Wendy Phillips (guest editor), but can't seem to recall exactly what about at the moment. Nor can I come up with any words for this, really. (I'm guessing that's standard practice, but in any case it's good to know they're 'pleased.') I wouldn't have posted it in...

BMJ, behind a paywall so far as I can tell. Interesting this wouldn't be deemed worthy of open publishing. Mods--if anything needs to be reformatted, my apologies, by all means change/edit/reformat, if necessary. I'm not copying the 'competing interests' section. It's so long it might break...

Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis Peter White, Susan Abbey, Brian Angus, Harriet A Ball, Dedra S Buchwald, Christine Burness, Alan J Carson, Trudie Chalder, Daniel J Clauw, Jan...

https://www.iqwig.de/presse/pressemitteilungen/pressemitteilungen-detailseite_93184.html

These people seem unusually fixated on this recently.

That's certainly easier to understand. But that's why I made reference to sudden onset, "Ramsay" ME. Due to circumstances (not least of which is that I live in NYC; still an obstacle for some, but for me it undoubtedly made it easier to find a specialist than if I lived in a rural area, or the...

The biggest one being that even "CFS" requires a formal diagnosis by a qualified medical professional, leading me to believe that if it's self-reported, that's...not "CFS." I mean obviously PWME unable to find a way to be diagnosed properly aren't people incapable of knowing well something's...

Am I reading this correctly? Refs to 'comparable studies' are: what looks like a similar hack job by Creed; 2 studies from 2011 relating to predictors of CFS both co-authored by Peter White; and another similar fishing expedition from 2008 co-authored by Wessely. (There is one more Wessely...

I was trying to be polite. Honestly it seems like a sick joke this is from Cochrane, and that Glasziou is on this might mean nothing yet really begs some strong questions, at the least. @dave30th I am curious if you agree this is a strange, weak review, and is there any possible significance as...

Not that I'm aware of. Not sure what the rules are. Here's something probably best skipped, but I thought it was worth posting just because it seemed like a better option than not. As Tom K would say, "Not A Recommendation." Perhaps the only interesting thing is that this author is further away...

I'm going to stick with N95s, which is all I've used since Day 1 of this, in spite of this. I don't know...is it me? I mean, for all we know no mask does a damned thing. After Omicron came around everyone I know seemed to get it, including myself and my wife, and I doubt anyone is more careful...

N95/P2 respirators compared to medical/surgical masks We pooled trials comparing N95/P2 respirators with medical/surgical masks (four in healthcare settings and one in a household setting). We are very uncertain on the effects of N95/P2 respirators compared with medical/surgical masks on the...

Physical interventions to interrupt or reduce the spread of respiratory viruses Background Viral epidemics or pandemics of acute respiratory infections (ARIs) pose a global threat. Examples are influenza (H1N1) caused by the H1N1pdm09 virus in 2009, severe acute respiratory syndrome (SARS) in...

I just don't get putting out statements known to be in conflict with guidelines when one knows they have a target on their back.