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  1. rvallee

    Commentary: Initial Strategy for the Future of DSM [Diagnostic and Statistical Manual of Mental Disorders] 2026 Oquendo et al

    Oh, that would be a terrible idea. Never cross the beams, this would give science a bad name and it does not need to be associated with things that are clearly not. If anything applies to this here, science is the process by which things described in this manual are taken out of it, which is the...
  2. rvallee

    Instruments for measuring fatigue in people with rheumatic and musculoskeletal diseases: a systematic review of measurement properties 2025 Machado+

    Simply asking a simple rating of 1-10 is just as good as any of those in most cases, and likely never falls below 90% of accuracy. Not because it's a good or accurate way, but because those questionnaires have too much fluff and confusion embedded in them that whatever usefulness they add, they...
  3. rvallee

    News from Canada

    House of Commons petition for "long COVID, post-vaccine injuries, and related conditions": https://www.ourcommons.ca/petitions/en/Petition/Details?Petition=e-7076. Not much meat or weight to it, but there is absolutely nothing being done for this in Canada. Health care is a provincial...
  4. rvallee

    The gap in fatigue research – and what we’re doing about it, 31 July 2023, The Kennedy Trust & Arthritis UK

    That's an odd perspective. It seems to be common in medicine, and explains so much, especially the lack of incremental progress. In most engineering fields, this is the stuff that drives us. We want to figure things out, especially odd puzzles like this. Sometimes just knowing, seeing where it...
  5. rvallee

    Trial Report REGENECYTE cord blood cell therapy in post-COVID syndrome: a phase IIa randomized, placebo-controlled trial, 2026, Huang et al

    Same pattern everywhere. Venture capital firms typically fund hundreds of startups, most fail, the few that make it are profitable enough that all the losses are worth it. Same with pharmaceutical trials. Research is mostly a brute force thing, outside of a few exceptions. Problem is that fact...
  6. rvallee

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    That's a weird idea. Laws can absolutely compel physicians, and they will follow the law if there are consequences attached. But what's needed is resources more than anything, and that is a strictly political process. The entire AIDS program was a 100% political process that followed a political...
  7. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    This is seriously damning of the institutions of medicine. It's no different than the circus of charlatans who took over US health policy, two sides of the same coin, really. In a nutshell: this junk pseudoscience is far more popular with medical professionals than it is with the general public...
  8. rvallee

    News from Austria and Switzerland

    Apparently this is a new website for the Austrian "National Reference Center for Post-Viral Syndromes": https://www.postviral.at/en/.
  9. rvallee

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2026

    I'm not sure it's a genuine explanation, it rings fake to me. The people who work on junk rehabilitation pseudoscience seem to enjoy their work, in fact insist on continuing and expanding it, despite the fact that they don't actually help anyone, and in fact overall cause massive harm. They're...
  10. rvallee

    Protocol Breathing control training as a treatment for functional seizures (BREATHS trial): a multicentre, assessor-blinded, randomised... 2026 Kanaan et al

    The paper later references the CODES trial, which is used by some to argue that CBT is such an option and that validates the model that this is a psychological condition, in fact asserts it despite the trial failing. A discipline stuck in a perpetual state of amnesia, where neither the past nor...
  11. rvallee

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Myth-busters: debunking long COVID myths and misconceptions https://www.who.int/europe/event/myth-busters--debunking-long-covid-myths-and-misconceptions The myths: Long COVID can affect anyone exposed to COVID. Being young and fit doesn’t protect you from long COVID. You don’t need to have...
  12. rvallee

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    The overall evidence for exercise has turned out to be extremely flimsy, because it's based on unrealistic ideas about how people live, where activity can only occur in the confines of a planned exercise routine. I lost track of the number of times I've seen reports about how it turns out that a...
  13. rvallee

    Why ME/CFS and Long COVID Activism in Germany Has Been Relatively Successful - blog, 2026, Strottman

    Pretty much everything I see out of Germany as far as what health care people are getting, nothing has changed, and so about the only measure of success here might be the decade project funding and the nice-sounding words that accompany it, but by this measure NIH RECOVER was far more...
  14. rvallee

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    Not really, it's not something that can be quantified, there is no "unit of exertion/functioning" or anything like it. There is also a huge misinterpretation in those scales as being mostly linear, when they are most definitely not, a thinking that 50% in functioning means being able to do half...
  15. rvallee

    The Stigma of self-report in health research: Time to reconsider what counts as “Objective”, 2026, Alwan

    Seems to me the problem is more about qualitative vs quantitative data, which is kind of the same thing but also not really. I don't see the standard use of statistical tools, as is common in medical research, as valid on qualitative data, they only work on quantitative data. Questionnaires are...
  16. rvallee

    Rehabilitation needs of long COVID patients in British Columbia, 2026, Moecke et al.

    "Imagine a world"-based medicine is a rehabilitation clinic that isn't able to rehabilitate a patient population, for which rehabilitation is entirely the wrong approach, asserts that rehabilitation services are needed, because reasons, despite 6 years of failing at it. Which itself follows...
  17. rvallee

    The Prevalence of Medically Unexplained Symptoms in Emergency Neurology Service 2026 Ernoić et al

    This is the best they could come up with. And it really is the best they can come up with. I have no idea what any of this has to do with anything, but it really sums up the mediocrity of this ideology. The mere possibility that they don't know everything, and so all of this is easily explained...
  18. rvallee

    The New Yorker: Did a Celebrated Researcher Obscure a Baby’s Poisoning?

    So much is contained within that, especially the part where he still has his job. The problem is the exact same we see in politics and everything that's broken: impunity. There is no connection between failure in work and success in a career. In fact it's entirely possible to make a widely...
  19. rvallee

    Psychological symptoms predict long coronavirus disease 2019: a prospective analysis from the Women’s Health Initiative, 2026, Al-Delaimy et al.

    Very odd to put out such a press release for such a mediocre study. Almost like it's all about repetition. I have no idea how this is even supposed to work out. This is obviously not a thing, there is no such thing as anything "preventative" here that can make any difference about not...
  20. rvallee

    Healthcare Consumption and Work Absenteeism [post COVID]: The Role of Cognitive-Behavioural Factors…, 2026, Verveen, Knoop+

    I've been reading these people's junk for years and I still have no idea what "cognitive-behavioral factor" even means. Even reading them describing it clarifies nothing: None of this means anything or has any relevance to anything in the context of chronic symptoms following an infection...
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