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  1. Dx Revision Watch

    The ME Patient Foundation

    Charity Commission: http://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityFramework.aspx?RegisteredCharityNumber=1181205&SubsidiaryNumber=0 Governing document CIO - FOUNDATION REGISTERED 17 DEC 2018
  2. Dx Revision Watch

    The ME Patient Foundation

    Claudia and Geoff: https://uttingwolffspouts.com/who-we-are-2/
  3. Dx Revision Watch

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    PDFs for FY ICD-10-CM Tabular List and Index The FY 2020 ICD-10-CM Index has also been checked and there has been no addition of Systemic exertion intolerance disease as an Index term only. Not all the FY 2020 files are available yet on the CDC site...
  4. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    The Resolutions approved at the 72nd World Health Assembly, in May, have now been added to the #WHA72 site: http://apps.who.int/gb/e/e_wha72.html#resolutions Resolution: WHA72.15 28 May 2019 Eleventh revision of the International Classification of Diseases...
  5. Dx Revision Watch

    About the Idea That You’re Growing Horns From Looking Down at Your Phone, 2019, New York Times

    I have one and a half tusks - does that count as horns? Should I be worried? Asking for an elephant.
  6. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    The ICD-10-CM FY 2020 Tabular List, Index and associated documents are available at: https://www.cdc.gov/nchs/icd/icd10cm.htm#FY 2020 release of ICD-10-CM Not available yet are the documents: Preface ICD-10-CM FY2020 Guidelines Conversion table FY2020 The Tabular List and Index are large...
  7. Dx Revision Watch

    A Proposed Rule by the Veterans Affairs Department on 02/05/2019 (US format - UK format 05/02/2019)

    NB: unlike the Veterans Affairs public comment exercise, the NHCS/CDC ICD-10-CM C & M Committee does not publish responses or summarize responses, nor does it publish rationales for decisions made following consideration of the proposals presented at its twice yearly meetings.
  8. Dx Revision Watch

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    Note that unlike the Veterans Affairs public comment exercise, the NHCS/CDC ICD-10-CM C & M Committee does not publish responses or summarize responses, nor does it publish rationales for decisions made following consideration of the proposals presented at its twice yearly meetings.
  9. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    The FY 2020 release of ICD-10-CM has been posted on the CDC site, today: https://www.cdc.gov/nchs/icd/icd10cm.htm#FY 2020 release of ICD-10-CM I can confirm there has been no change to the G93.3 coded terms and the R53.82 coded terms. Either: a) A decision was made by the NCHS Director not...
  10. Dx Revision Watch

    A Proposed Rule by the Veterans Affairs Department on 02/05/2019 (US format - UK format 05/02/2019)

    The FY 2020 release of ICD-10-CM has been posted on the CDC site, today: https://www.cdc.gov/nchs/icd/icd10cm.htm#FY%202020%20release%20of%20ICD-10-CM I can confirm there is no change to the G93.3 coded terms and the R53.82 coded terms.
  11. Dx Revision Watch

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    The FY 2020 release of ICD-10-CM has been posted on the CDC site, today: https://www.cdc.gov/nchs/icd/icd10cm.htm#FY%202020%20release%20of%20ICD-10-CM I can confirm there is no change to the G93.3 coded terms and the R53.82 coded terms.
  12. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The only information I have found, so far, for this additional study group is the content of the call from Jen Brea.
  13. Dx Revision Watch

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    "Medical Humanities is an official journal of the Institute of Medical Ethics." Gawd help us! The other open access commentaries, editorials and original research papers listed with the Sharpe & Greco piece as "Latest Articles" have received between 4 and 1 postings on Twitter.
  14. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    "They are looking for patients who: Have been diagnosed with ME/CFS Have been diagnosed with craniocervical instability (CCI) Are pre-surgery, post-surgery, or not planning to have surgery"
  15. Dx Revision Watch

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    https://bmj.altmetric.com/details/62366783/twitter So far, Altmetric has seen 1 Reddit thread. So far, Altmetric has seen 109 tweets from 80 users (lists all Twitter accounts that have posted). The data shown below were collected from the profiles of 80 tweeters who shared this research...
  16. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Also strikes me as odd that a member of the public is putting out a call for prospective study participants prior to Stanford, themselves, calling for potential participants.
  17. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    So this is presumably an "add on" to an existing study? I agree, it seems odd not to link to the existing study's protocol page.
  18. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I am missing something here? I don't know whether it is, but if the nanoneedle test* is being used for this pre and post op ME/CFS [sic] and CCI surgery study... the nanoneedle study was a pilot, using n=20 ME, CFS patients, n=20 healthy control, no sick controls and not yet subject to a...
  19. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Stanford researchers looking for ME/CFS patients with CCI June 19, 2019 ...The aim is to compare how ME/CFS patients with CCI are similar to or differ from other ME/CFS patients and healthy controls, and to measure changes (if any) in patients pre — and post — surgery... and
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