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Chronic Exhaustion Syndrome (CES) Chronic Fatigue Impairment Disorder (CFID) Post-Exertional Malaise Syndrome (PEMS) Immune Deficiency Fatigue Syndrome (IDFS) Neurogenic Exhaustion Syndrome (NES) Systemic Energy Conservation Disorder (SECD) Neuro-Immune Exhaustion Syndrome (NIES) Endurance...

Another angle is to look at how much research (biomedical) has relied on funding by patients. The MEA in the UK (might have some figures/examples), Invest in ME also might be able to provide examples. Solve might have some examples re the US. eta: just re-read your initial post. from a...

New Covid variant sparks fear as India sees huge surge of infections New Covid variant sparks fear as India sees huge surge of infections (msn.com)

Recent interest in mushrooms and their components as potential therapies for mental health, along with recent government and health authority approvals, has necessitated a more comprehensive understanding of their effects on the cellular microenvironment of the brain. Amanita muscaria has been...

Abstract Objectives: To assist with planning a congressionally requested conference on women's health research, the National Institutes of Health (NIH) Office of Research on Women's Health (ORWH) invited comments to characterize public concerns related to any or all of the specified public...

Merged thread full article https://news.cornell.edu/stories/2023/04/95m-fund-chronic-fatigue-syndrome-research

ABSTRACT Topic Importance Post-Acute Sequelae of SARS-CoV-2 (PASC) is a long-term consequence of acute infection from coronavirus disease 2019 (COVID-19). Clinical overlap between PASC and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has been observed, with shared symptoms...

judging by the replies to that post, his suggestion was not very well received. I was amazed to see he didn't know what FODMAPs are, nor apparently was he aware of the high oxalates in celery juice, and the potential effect on kidneys.

Introduction As of February 2023, there have been approximately 759 million confirmed cases of COVID-19 infections globally1 and some individuals have experienced persistent symptoms, such as fatigue and shortness of breath, after recovering from the initial illness from COVID-19. The UK...

Abstract Background: Fatigue and re-admissions are the important consequences of heart failure that cause limitations in patients’ daily activities, personal, and social affairs. Energy conservation techniques are among evidence-based and non-pharmacological approaches that can reduce fatigue...

Association of Migraine disorders (video presentation) S5:Ep4 – Allodynia and Migraine (full transcript at link) https://www.migrainedisorders.org/podcast/s5ep4-allodynia-and-migraine/

By Diane Mapes, Fred Hutch Cancer center very long piece https://www.fredhutch.org/en/news/center-news/2023/04/viruses-linger-with-lasting-impact-hpv-hsv-hiv-long-covid.html

if you click on the 'history' tag you will find loads of threads on the various publications.

Vaccine against Epstein-Barr virus may enter clinical trial next year German startup plans to test EBV-001 in preventing mononucleosis, MS risk factor https://multiplesclerosisnewstoday.com/news-posts/2023/04/10/ebv-vaccine-ebv-001-may-enter-clinical-trial-2024/

Introduction: This study aimed to assess whether psychiatric disorders predict the onset of fibromyalgia and chronic fatigue syndrome (CFS) which develop in the presence of pre-existing muscle pain or fatigue. Methods: The population-based Lifelines cohort study included 148,614 adults with...

April 24 @ 6:00 pm - 7:30 pm Virtual Event https://bacme.info/event/webinar-workshop-cyp/

The problem here is it depends on what information the pwME was 'fed' to start with, even if they (the therapist) do give some kind of reassurance that the illness is not 'all in their head'. If it's all about 'boom and bust', setting baselines and trying to get them to think positive thoughts...

Summary Background Long-COVID (LC) encompasses diverse symptoms lasting months after the initial SARS-CoV-2 infection. Symptoms can be debilitating and affect the quality of life of individuals with LC and their families. Although the symptoms of LC are well described, the aetiology of LC...

the about blurb https://principia-scientific.com/principia-scientific-international-psi/ The Essential Guide to Chronic Fatigue Syndrome Published on April 7, 2023 Written by David Charbonneau very long and largely from a US angle but makes a few UK references, although no mention of the...

allegiance bias is also not there (afaics): see recent cbt watch blog: BMJ Mental Health and Bias http://www.cbtwatch.com/bmj-mental-health-and-bias/