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@Amw66 I just now added two links about PEM and CBT/GET to my previous post. I hope that helps?

So sorry to hear that :( The Swedish Covid Association has some info material. Maybe contact them and ask? They are well aware of the risks regarding PEM, as well as the politics around the closing down and opening of new long covid clinics in the Stockholm region etc...

I actually don't mind a generic term in this case. In Sweden there's a fairly well-known term for this set of symptoms: "hjärntrötthet" (literally "brain tiredness"). I believe it's usually called mental fatigue in English? I like using it and have found it helpful on several occasions, because...

Mainstream article about tiredness and fatigue, with Anna Andreasson. The study is mentioned. Trött hela tiden? 9 möjliga orsaker https://www.expressen.se/halsoliv/halsa/sjukdomar--besvar-1/trott-hela-tiden-9-mojliga-orsaker/ Google Translate, English ("Tired all the time? 9 possible causes")

A bit more info about the petition Vanja Wikström mentioned. "For better ME healthcare", by Björn Eklund (who has recovered from ME, author of the book "From bedbound to marathon") För bättre ME-vård https://www.skrivunder.com/for_battre_me-vard (I have mixed feelings about the petition and...

They were talking about ME and exhaustion disorder/burnout on the Swedish morning tv-show Malou Efter Tio today. With pwME Niklas, his partner Vanja Wikström who works as an influencer, and prof Jonas Bergquist. (I haven't been able to watch it myself.) Video, 18 minutes, in Swedish...

The Swedish Research Council is allocating 50 million SEK to research into post-COVID syndrome https://www.vr.se/english/just-now/news/news-archive/2021-11-15-50-million-sek-to-research-into-post-covid-syndrome.html 14 out of 56 applications were approved. 3 million goes to a BPS project at...

About Maroti et al's alexithymia study: https://www.s4me.info/threads/patients-with-chronic-fatigue-syndrome-do-not-score-higher-on-the-autism‐spectrum-quotient-than-healthy-controls-2018-bileviciute‐ljungar-et-al.4090/#post-71683 (Edited to add quote.)

A related forum thread: https://www.s4me.info/threads/the-mind-body-syndrome-study-2019-maroti-et-al.10769/

This study apparently got 3 of the 50 million SEK Vetenskapsrådet/The Swedish Research Council handed out for postcovid research in 2021. (VR received 56 applications in total. 14 were approved.)...

Post-Acute Sequelae of COVID-19 and Cardiovascular Autonomic Dysfunction: What Do We Know? by Giandomenico Bisaccia, Fabrizio Ricci, Vittoria Recce, Antonio Serio, Giovanni Iannetti, Anwar A. Chahal, Marcus Ståhlberg, Mohammed Yunus Khanji, Artur Fedorowski, and Sabina Gallina "Abstract...

"In total, participants are asked to answer a maximum of 200 questions in one session." :jawdrop::eek:

Pretty chilling that insurance companies are funding research into psychosocial "perpetuating factors" and consequences for work capacity and sick leave... :(

The researchers submitted an application regarding a number of changes to the study protocol in June 2021. It was approved by the Ethical Review Authority on 27 July 2021. The following info has been copied from the application and auto-translated. Some of the amendments in brief: Addition of...

"Stockholm University Psychology Department Andreasson's research lab" https://www.psychology.su.se/forskning/forskningsomr%C3%A5den/biologisk-psykologi/forskning/andreassons-forskningslabb "Funding [...] Skandia Folksam" = insurance companies.

For what it's worth. The Andreasson/Jonsjö team has apparently widened their current ME study on low grade inflammation to include both burnout and post-COVID. Webpage here, forum thread here. I believe this is part of their efforts to try and subgroup patients by combining psychological and...

The webpage was updated in May 2021. The name of the study has apparently been changed to "the role of low-grade inflammation in long-term complicated fatigue". Post-COVID and utmattningssyndrom (burnout, work/stress related exhaustion syndrome; has a separate diagnostic code in Sweden, is not...

News article about the opening of the new ME clinic in Umeå, Sweden. The patients will be sent back to primary care after receiving their diagnosis. The clinic will not be offering any kind of treatments, and they will not be doing any home visits to the severely ill. :( Både glädje och oro...

The system is broken on so many different levels :( For example, when the Swedish ME Association complained to the Ethical Review Authority about one of Jonsjö & Olsson's ACT studies in 2015, pwME were ridiculed and brushed off: Patientförening försökte stoppa forskning om ME...