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  1. ahimsa

    Blog post by Galen Warden: For Family and Friends

    Good catch. I confess that I did not read this whole thing, just skimmed. I got the link somewhere else and just passing it on.
  2. ahimsa

    The Rest Room: What actually is Post-Exertional Malaise? with Todd Davenport

    Just FYI, this must be some regional usage of bonked to mean exhausted because I don't recognize it. Zonked, yes, but not bonked. Back to the podcast, I thought this bit was good (added some extra line breaks)
  3. ahimsa

    COVID-Specific Long-Term Sequelae in Comparison to Common Viral Respiratory Infections: An Analysis of 17,487 Infected Adult Patients 2022,Baskett

    Moved from the Long Covid in the media thread Researchers looking for long COVID symptoms find only 7 https://www.fiercehealthcare.com/providers/researchers-looking-long-covid-symptoms-find-only-seven The study being discussed is here: https://academic.oup.com/ofid/article/10/1/ofac683/6953331
  4. ahimsa

    Blog post by Galen Warden: For Family and Friends

    Blog post from Galen Warden about how family and friends can support ME patients. Includes links to research and medical descriptions of ME. https://www.galenwarden.com/post/for-family-and-friends
  5. ahimsa

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    The NIH has now posted a copy of the newsletter on the resources page of their website: https://www.nih.gov/mecfs/mecfs-resources (it's at the bottom of the page)
  6. ahimsa

    USA: News from Solve ME

    Webinar hosted by Solve M.E. and BIO: “Long Covid: What Will It Take To Accelerate Therapeutic Progress?” February 21 @ 10:00 am - 1:00 pm Pacific / 1:00 pm - 4:00 pm Eastern Full announcement here, includes list of speakers...
  7. ahimsa

    USA: News from Solve ME

    Blog post by Emily Taylor of Solve M.E.: Key Takeaways from the New Federal Budget https://solvecfs.org/key-takeaways-from-the-new-federal-budget/ Highlights:
  8. ahimsa

    USA: Massachusetts ME/CFS & FM Association news

    Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig Sunday, January 22, 2023, 4 p.m. EST Event is free and will be recorded for later viewing. Register here: https://www.massmecfs.org/news-events/66-sunday-conversations/832-sunday-conversations-jan2023
  9. ahimsa

    News from Canada

    Adding some extra information to help folks navigate this issue of the Canadian Medical Association Journal. The first paragraph that's quoted is from this section - https://www.cmaj.ca/content/195/2/E80 The second paragraph is from this section (matches link in post) -...
  10. ahimsa

    AMA: What doctors wish patients knew about COVID-19 reinfection (USA)

    [Moderators - This article is about COVID-19 reinfection. I posted in the Long Covid forum because of the final section that talks about Long Covid. But please move it if it belongs elsewhere.] What doctors wish patients knew about COVID-19 reinfection...
  11. ahimsa

    The Promise of Patient-Led Research Integration into Clinical Registries and Research

    Thanks for posting, @Andy! I saw this info yesterday and didn't have the energy to do a summary or figure out where to put it.
  12. ahimsa

    2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost

    Yes. His quote is at the very end. Here's a gift link for the article (no paywall for 14 days): https://wapo.st/3GLDrJQ This same Washington Post article is also being discussed on this thread: https://www.s4me.info/threads/long-covid-in-the-media-and-social-media-2023.31490/page-3#post-456634
  13. ahimsa

    Long Covid in the media and social media 2023

    Posting a gift link for the Washington Post article for anyone who runs into a paywall: https://wapo.st/3GLDrJQ On balance I think the good parts of the article outweigh the bad. But, yeah, I can't believe they included a quote from Peter White. o_O:banghead:
  14. ahimsa

    Long covid outcomes at one year after mild SARS-CoV-2 infection: nationwide cohort study 2023, Mizrahi et al

    The CNN article about this study (https://www.cnn.com/2023/01/11/health/long-covid-symptoms-study-wellness/index.html ) includes a section talking about the limitations of the study.
  15. ahimsa

    USA: News from #MEAction

    A look back at the "top hits from 2022" for #MEAction has been posted on their website: Let’s Look at #MEAction’s Top Hits from 2022
  16. ahimsa

    USA: News from #MEAction

    From the #MEAction website: #MEAction is thrilled to announce we will be hosting a virtual #MEAction X The Long COVID Survival Guide Panel featuring editor Fiona Lowenstein and contributors Rachel Robles, Chimére L. Smith, and Terri L. Wilder from the recently released book on Tuesday, Jan 17th...
  17. ahimsa

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID

    WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID https://www.webmd.com/covid/news/20230106/researchers-hunt-long-covid-biomarkers Brief mention of ME/CFS:
  18. ahimsa

    Compilation of ME articles in 2022

    @Kalliope, let me add my thanks, too! I appreciate your hard work and I'm happy to see the number increasing. Bookmarking for future reference.
  19. ahimsa

    Long COVID Physio: Long COVID Video Series

    No mention of ME or ME/CFS anywhere, at least, none that I found (please correct me if I missed one). I get why they didn't mention it in the first couple of introductory videos. But why is ME not even mentioned in that third video? (the one called "What are Common Long COVID Symptoms") I...
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