Search results

Excerpt from an email from #MEAction: Link to full announcement (name removed): https://mailchi.mp/meaction/wad-protest-announcement

Washington Post: Desperate covid long-haulers turn to costly, unproven treatments Regular link (paywall) https://www.washingtonpost.com/health/2022/11/25/long-covid-treatments-unproven-brain-fog/ Gift link (no paywall for 2 weeks) https://wapo.st/3V9Kz8U

ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope https://www.medscape.com/viewarticle/984122

[I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP. Text of tweet: "I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...

Someone collected a good selection of twitter threads that responded to this article into a single twitter thread: "A quick thread of THREADS from experts, journalists, and advocacy groups who have spoken out against the inaccurate, biased, and harmful @NYMag /@intelligencer story on ME and...

This is an article from the Latest News section of Open Medicine Foundation, part of their #TripleGivingTuesday November fundraising campaign. Does ME/CFS Have a Biomolecular Signature? Raman Spectrometry Based Biomarker Discovery for Myalgic Encephalomyelitis (RASPBERRY-ME) ME/CFS is a...

Sorry, what does IAPT stand for?

I think that particular statement is about this study: https://www.nature.com/articles/s41467-022-32507-6 But here's a copy of the References, just in case I cut/pasted the wrong link: PS. Medscape requires you to register to see a lot of their content, but they only require an email address...

[note: I just got this via a Medscape alert, I have not read it yet, just grabbed a few sections for the quote below] Do Fatigue and Exercise Intolerance Post-COVID-19 Indicate a Chronic Disease? Authors: News Author: Miriam E. Tucker; CME Author: Charles P. Vega, MDFaculty and Disclosures CME...

Here are a few books that have not yet been mentioned: * Patient 002 by Floyd Skloot Loosely inspired by the early Ampligen trials. I enjoyed reading it. Review: https://www.publishersweekly.com/978-0-9792091-6-1 * The Matzah Ball by Jean Meltzer Romantic comedy. Not usually a genre that I...

From a recent Solve M.E. email announcing their Solve Spotlight webinar series: ========== In our Solve Spotlight webinar series, we connect with members of our community to share their experiences with ME/CFS, Long Covid, and other post-infection diseases. In the coming months, we’ll focus on...

Heart Rate Biofeedback for Myalgic Encephalomyelitis: From Physiology to Practice Webinar by Workwell Foundation's Todd Davenport & Mark Van Ness with @MEforeningen (Norwegian Myalgic Encephalopathy Association) November 16th 9 am PST (Corrected time! Original tweet says 8 am) Register Here...

#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff! by Adriane Tillman https://www.meaction.net/2022/11/03/bold-press-strategy-bold-press-payoff/

Merged post Will Long COVID Research Provide Answers for Poorly Understood Diseases Like ME/CFS? https://medicine.yale.edu/news-article/will-long-covid-research-provide-answers-for-poorly-understood-ailments-like-chronic-fatigue/

I also have not watched, so no comment on content, but here's a link to slides that go with the video. Oddly, even though this is a google doc that's posted online, without any password or other restriction, all the pages are marked with this statement: "This courtesy handout is for your...

The US CDC director, Dr. Rochelle Walensky, has tested positive for COVID-19. This is the same person who downplayed masks and air filtration as preventative measures (once compared mask wearing to the "scarlet letter"). I would not wish COVID (or any other illness) on anyone! I hope no one...

In Cleveland and beyond researchers begin to unravel the mystery of long COVID-19 https://www.cleveland.com/news/2022/10/in-cleveland-and-beyond-researchers-begin-to-unravel-the-mystery-of-long-covid-19.html I've not had time to read this, just skimmed it, but didn't see any mention of ME/cfs.

Personal essay on CNN website: Opinion: Doctors didn’t believe that I had Covid-19. I found a way to make them listen Opinion by Chimére L. Smith https://www.cnn.com/2022/10/17/opinions/long-covid-health-care-smith/index.html

My cognitive problems don't disappear when lying down, but I have often joked that my IQ goes up 30-40 points when I'm lying down. And my husband knows better than to ask me a question while I'm standing up. I always have to sit down first. I guess I've never posted these kinds of comments...

Thanks, @Hutan! I appreciate folks who are able to analyze and make comments on posts about research. It's not something I'm able to do. I can't answer that question, but here's her twitter profile, which has a link to her youtube channel. https://twitter.com/GertrudRey And here's a list...