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    FINE trial patient booklet 29/04/05 Pauline Powell

    A point has occurred to me about that laughable "use exercise of maximum fatigue". Apologies for returning to the subject but it is probably sensible to pre-empt the obvious purported rebuttal which might be anticipated. It might be said that we are all, or mostly, long term severe moderate to...
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    FINE trial patient booklet 29/04/05 Pauline Powell

    I suppose that at times of maximum fatigue one could practise rolling one's eyes. Would that count?
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    The Future Challenges: Replenish-ME

    Does anone else get the impression that all this is just a way of diverting scarce resources to enable geeks to play with their tackle?
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    FINE trial patient booklet 29/04/05 Pauline Powell

    It does make you wonder what illness the people had who were being seen. It seems to bear no resemblance to anything we have. " Use exercise at the time of maximum fatigue". For Heaven's sake.
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    He did always say that most of his patients believed that their illness had a psychological component and that it was only those who maintained the belief that the illness had a physical cause who refused to get better. It seems quite possible that the observation was valid, though he does not...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    [The problem seems to be that we do not know what the psychological theories were, how they might have changed, or what they are now. The views do not ever seem to have been tested by knowledgeable critics in a forum where answers must be given. Apart from that all is well.
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    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    One would hope that the organisers would have foreseen the difficulties surrounding a screening of "Unrest" and have devised a form of wording to minimise those problems. What could that form of wording be?
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    I thought CS and the MEA proposed changing the name around 2002, give or take a year or two. However one tries to make sense of that remark of Holgate's, one can't. There could have been a mistake in transcription, but that would still not account for a belief that CFS preceded ME.
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    Trial By Error: New Biopsychosocial Study of Fatigue in HIV Patients

    Do you think they realise the possibility for category errors in declaring everything to be biopsychosocial? Probably even injuries sustained from a blow with "a heavy, blunt instrument" must be considered interpretable as biopsychosocial.
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Unfortunately we know what his "predictors of poor prognosis" are, or at any rate, were.
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I do not remember the source but I have a recollection of reading that in the shake-up of the NHS in about 1990, there was a proposal to close the Maudsley and merge its operations with Kings. There was, as one would expect, substantial, and ultimately successful, fightback. Clearly that must...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Perhaps the situation around 1990, when the internal markets within the NHS were being developed, needs to be viewed purely in terms of economics. Faced with an oversupply of psychiatrists the options were either to deal with a reduction in value or to expand the market.
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    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    Could explain a lot. Perhaps he sees chronic fatigue as something to strive for.
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I was very slow to realise that the title SW gave to his lecture on CFS, which is linked above, given in 2008 was "Treatment of neurotic disorders". Hard to square that with some of his claims about not believing it to be a mental disorder, or whatever it is he claims.
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    We see amazing new quotes with everything produced. That Komaroff, Wessly interview contains this Stephen Holgate. For years the medical profession did not acknowledge chronic fatigue syndrome (CFS) as a ‘real’ condition. The situation became confused when the term myalgic encephalopathy (ME)...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    It is strange thinking that apparently requires evidence to refute the suggestion that it is a psychiatric disease, when there was never any evidence that it was a psychiatric disease. Jenkins made the point in 1990 that hysteria required a positive diagnosis. Strange that was not considered a...
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