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Mine was exactly the same, only after the fact. Even after explaining what happened to me she didn’t really believe me. Mine prescribed 50mg from the start. That sounds really horrible :( I’m sorry you experienced that. Even on 50mg i never experienced anxiety. I really liked the almost manic...

I find this topic fascinating and equally disturbing. I already wrote about my strange experiences with pregagablin, i thought it was on this forum but maybe it was at the other place as i can’t find it. Was hoping to find it to save explaining again :confused: I wasn’t in the worst age range...

I tried a CBD vape a couple of years ago. It did absolutely nothing. I passed it on to a friend with arthritis and I think it did nothing for her too (though she was used to smoking the traditional stuff for her pain and she said there’s was no comparison between the two)

Its a shame about the cost, it seems like a great way of forcing complete rest, something a lot of us struggle to do even on a basic level. It sounds like absolute bliss.

They are amazing, I had to buy some as I was almost suicidal when neighbour below started blasting music every day a few years ago. Only problem is mine hurt my ears after 20 mins so I have to take them off regularly. The blasting music still shakes my bedroom floor from beneath but sound...

Sorry to hear you’re not good at the moment @Squeezy :hug: It could be hayfever, or the meds, combined with life situations catching up with you at the mo causing you to be more run down than usual. Maybe its all been building and you’ve been too busy dealing with things to allow the crash to...

So well put and true, this almost made me cry. The only reason i didn’t shed a tear is because i don’t have the energy to produce one right now. We need these bullet pointed and posterized :thumbup:

Exactly my thoughts. The cost is too great plus, how long they manage to keep the PwME alive while inflicting and torturing said person with their version of help is anyone’s guess. The potential for finding ourselves in this situation in the future haunts many of us.

"Oh come on," she said. "You don't want to live with your mother for the rest of your life, do you?" I don’t live with my parents because it was abusive; but at the age i’m at now, after 20 years of hell. If a therapist ever said something like that to me; presuming they’d been made fully aware...

I’m intrigued now. What’s a brain zap?

Signed. These people are getting on my tits. Sick to the back teeth of this system. I wish we could all escape it :( Thank you @Sly Saint

This used to be really bad for me, it was like an old fashioned film reel exploding in my head. Explosive flashes of unrelated images firing at what felt like the front of my brain. I could almost hear the camera shutter noise. Very difficult to explain, but i’d also get this huge thumb shaped...

Is that their new term for the chronically ill?

We kind of have to discuss our private health ailments in public now; just in the GP’s waiting room. If we go in person to make an appointment, you have to tell the receptionist what you think is wrong with you before being allowed an appointment. What happened to confidentiality with the GP...

Sepsis smelled like foisty wet hay

So that’s where mine vanished to! I was wondering what that mouldy, mushy thing was that i tried to hoover up the other day :ill:

Thanks @Andy and @Itsnotallaboutmepodcast I’m listening now via the link, but is there a way to access other podcasts? I can’t download new apps to my phone as i can’t sign in to apple and don’t have soundcloud or twitter. Tried typing ‘its not all about me’ on the soundcloud page that the...

Only had a quick look but one website said the hydro was 4 times as powerful as other antihistamines, and they thought it caused birth defects. They decided that something so powerful had to be put on prescription. But that was only a quick look

I’m liking this guy at the moment... There was one night that i got to the end of the 9 hour video still awake so its pot luck if it helps me or not o_O

Thats okay, i guessed that ;) No medical advice taken ;)