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I quite often microwave in a mug rather than using the kettle.

I thought the MEA research fund was intended for biomedical studies. Epidemiology seems a poor choice, especially now with such variation likely depending which Long Covid people being included. And how the clinical toolkit one got funded beats me. I'd also like to know why they are planning to...

Some quotes: So not 'randomly assigned to the treatment'. They were paying customers, not research subjects. So most very short duration of Long Covid, therefore with a high probability of getting better anyway. No idea whether this might be relevant to patients feeling better after the...

Recent ones included a fully online one due to the pandemic in 2021 and 2022. Some of us on the forum attended the 2022 one free as officially sanctioned reporters and wrote up quite a lot of the talks. IACFSME 2022 Virtual Medical Conference: Day 1 Workshops: 27 July (9 am to 5 pm EDT) I found...

Basically it seems they did a series of telephone interviews spread over a few months, not recorded, with the interviewer asking prompt questions and taking notes. The interviewer then wrote it up from their notes and the pwME/carer made changes. There's an awful lot of pseudo academic sounding...

I don't know how accurate the Vivosmart is on sleep, but my series of Fitbits over the years have all been completely crap at working out when I'm asleep, telling me I'm sleeping when I'm lying still listening to an audiobook, and telling me I'm waking multiple times through the night when I'm...

Er, what behavioural aspects?

I earlier commented that ME/CFS Science might sound too much like Science for ME. I said I would consult the committee. There were no objections, and since we think your blogs are excellent, if someone did associate your blog with S4ME that would be a bonus from our point of view. However, as...

If they were randomly assigned to the treatment, that implies another group were not assigned to the treatment. I see no mention of them in the abstract. Were they a control group?

@bicentennial I don't understand your post. Can you give a link to the information about the ME Society?

I think it's possible Neil Riley has done some very useful work over the years behind the scenes for the MEA. But nobody can be good at everything, and in my view he is unsuited to the public facing roles he currently holds, including writing for the magazine and dealing with complaints. Times...

I had to look that one up. Seems to be a synonym of sceptic.

Week beginning 16th December 2024 Cochrane announcement Update on ‘Exercise therapy for chronic fatigue syndrome’ Announcement quoted in full: "In 2019, Cochrane published an amended version of the review 'Exercise therapy for chronic fatigue syndrome’ and, at that time, announced an intention...

Looking at the Charity Commission rules on holding AGM's I note that they changed and now not all charities have to hold an AGM. However, looking further, it seems that Charities like the MEA that have voting members, not just trustees, do need to hold an AGM...

Thank you, @ME/CFS Skeptic. That's a really good article giving a clear overview of key research this year.

It's odd that Garner doesn't seem to have noticed that he doesn't have thousands joining him and signing petitions supporting his approach to Long Covid being provided on the NHS. The fact that he alone is quoted repeatedly should give him a clue that his theory is bunk.

God I wish Garner would shut the f*** up. He's doing so much harm.

There's more about the issues raised in this letter on the MEA news thread. https://www.s4me.info/threads/united-kingdom-me-association-news.19070/page-62#post-575813 Relevant documents and the Q&A I refer to can be found here: https://meassociation.org.uk/about-the-mea/policies-and-documents/

I have just sent the following personal letter to the Trustees of the UK ME Association. Or at least to some of them. I had 2 email addresses and guessed the rest - at least 2 have bounced back. __________________ To the trustees of the ME Association, re concerns about the MEA trusteeship...

ME/CFS Research Unwrapped