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  1. Trish

    Miranda Hart - British comedian

    I looked and only found such a post on a parody account. https://x.com/SharpeParody/status/1847309486165209458
  2. Trish

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    These time lapses are extraordinary. Or deliberate. Slow torture.
  3. Trish

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    It will if we post a copy on the forum. But I don't want to divert this thread further with Cochrane discussion that's better done on another thread.
  4. Trish

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I have just posted this on Hilda's talkpage:
  5. Trish

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    This is the aspect I want Hilda and the Cochrane editors to take notice of. They are, as far as we know, refusing to reopen their earlier decision not to withdraw the Cochrane exercise review, and Hilda has said campaigning won't shift them. I think this public rebuke against ignoring legitimate...
  6. Trish

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    We should certainly send the article to Cochrane.
  7. Trish

    Lack of fever during acute infections

    I haven't ever seen 37.5 as standard. It's usually stated as 37.
  8. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Also, as usual, Tyson claims that this is measuring something. No idea what. If you want to identify issues that are important to the patient, ask them, or give them open ended questions, don't steer their answers with long lists of vaguely worded tick box sentences.
  9. Trish

    An open letter regarding Scientific Reports

    Is this the same Dorothy Bishop I vaguely recall praising some bad BPS research?
  10. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    A few comments on this explanation on the first page; my bolding: This seems to be based on the premise that clinical needs are primarily served by a series of visits to a rehab clinic, production of a care plan, then discharge back to the GP. Hence it lists 'clinical needs' as being things...
  11. Trish

    A pilot self-advocacy program by Awareness for POTSies

    Module 2, which I've just raced through to get the gist, describes itself as the first module of the self advocacy program. It seems to be pretty sensible stuff about being assertive not aggressive, self compassion, verbal and non verbal communication, self advocacy can be difficult and take...
  12. Trish

    A pilot self-advocacy program by Awareness for POTSies

    I signed up and have read the first module. The topics covered are: What the acronym stands for Common POTS myths, and explanations why they are wrong. The myths listed include that POTS is rare, you have to faint to be diagnosed, it's only young females, and your blood pressure drops when you...
  13. Trish

    A pilot self-advocacy program by Awareness for POTSies

    It sounds like there are two different things going on here. There is a module for helping people gain self advocacy skills which might, I imagine, be valuable in any medical setting, to enable people to feel more confident in medical consultations to ask useful questions and self advocate for...
  14. Trish

    The Concept of ME/CFS

    There is extensive and inconclusive discussion of alternative names on this thread: The use of the labels ME, CFS, ME/CFS
  15. Trish

    The Concept of ME/CFS

    I'm also unsure about singling out physios and clinical psychologists as professions which uncritically follow theory based treatments. While it's often true they do, I think those theory based treatments originated with doctors who then instructed the therapists to carry them out. The roles are...
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