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Overly broad inclusion criteria are an important issue that needs to be highlighted - and Nina Steinkopf does this well here - but, as I've been harping on about in the LP study thread, we need to be wary of Wyller and his likes becoming more crafty. The claim for the proposed LP study is that...

Also an interesting approach to overcoming the problems with the accuracy of antibody testing. More at: https://www.rnz.co.nz/news/national/417821/new-covid-19-antibody-blood-test-to-check-for-undetected-cases-in-southern-region

There've been some who have likened our exercise intolerance to the sort of allergy that you treat with desensitisation therapy - so GET would be a sort of desensitisation therapy for us. Once again I can't remember who said that - can somebody please give me my memory back! - but likely it was...

There've been a few interviews here recently with some Swedish health official (can't recall the name) telling us that NZ is doing it all wrong. This is how "wrong" things are: https://www.rnz.co.nz/news/national/417812/covid-19-live-updates-from-nz-and-around-the-world-on-29-may

Cort has done a write up on this and the author (Mackay) was responding to some questions in the comments. https://www.healthrising.org/blog/2020/05/27/neuroinflammatory-paradigm-chronic-fatigue-me-cfs/

This is actually quite good, especially for something produced by somebody who, presumably, has only been digging into the whole PVFS/ME/CFS murky mess for a few weeks. His previous video did have a few typical "beginner's mistakes", but this second one is much better, showing somebody who's a...

Seriously impressive work @Michiel Tack. Thank you so much!

There's also this thread on non-allergic rhinitis: https://www.s4me.info/threads/non-allergic-rhinitis.8163/

The Stuffy Nose Syndrome seems to have struck a chord so here are the articles cited in Craddock's presentation - some are quite dated - about rhinitis in ME. Have only skimmed the abstracts but it looks like rhinitis is a Baraniuk interest that hasn't really caught on. He appears to view it...

The long and the short of this review is that nobody's been interested enough in us to even figure out how many of us there might be (in Europe). No surprises there. Sigh. One of the three - three! - studies that made it into the review was done in Iceland in 2001 so didn't include any of the...

Started to watch the first speaker but found all the general functional and integrative medicine stuff less than interesting. Skipped forward to speaker #4 (1:54:52) "Travis Craddock, Ph.D. - Director of the Clinical Systems Biology Group The Potential Role of Ocular and Otolaryngological Mucus...

This is interesting given that the main argument against lockdown is an economic one. At least in Scandianavian culture it may be a lot less relevant than commonly thought. My take: Lockdown requirements don't make much difference to most people's behaviour, they just stay home anyway because...

Just read this article. A valiant effort, Victor. Thank you. What happens with this study in Norway will affect how LP is perceived in every country unlucky enough to have been infiltrated by it. It's infuriating, unfair and misleading that you should be presented as an activist who wants to...

Wondering about the portable VO2 device as shown in the photo in the MEA announcement. Clearly, getting good data on our oxygen usage during ordinary activity would be highly valuable. Unfortunately it also looks to be a tricky proposition. Many of us spend most or all of our days either...

I don't think these have been posted yet? Recorded at AGM in November 19, posted on Youtube March 20. Some issues with sound quality, especially with the Q&A video. Dr Vallings (eclectic overview of international research, nothing new in there): Prof Tate (presentation of his team's work...

I don't know where Leif Edward Ottesen Kennair and Per Magnus stand on the BPS scale but let's assume they're genuine in their wish to produce quality research. I'm still extremely concerned that the proposed use of CCC is giving false credibility to this study. The CCC stand and fall with the...

Emerge have been sharing a lot of stuff on social media, I particularly loved this song. Shows there is one "body system" unaffected in ME after all: our sense of humour. :rofl: https://www.facebook.com/sarah.prosser.73/videos/3338735606137311

And other researchers/doctors (? sorry, memory lapse) say our immune system is dysregulated, with parts of it overactive and other parts underactive. I also wonder if the type of virus makes a difference? That as a group - or as individuals - we are more resistant to some viruses and less to...

Agreed. I cringe every time an article mentions the word 'controversial'. Often a well-intentioned attempt at increasing credibility but unfortunately tends to have the opposite effect. Anyway, Moreau is not sitting on his hands. This sounds promising: From...

An early start to ME Awareness Day, several short articles in a small weekly community paper (sorry, can't copy and paste): a patient story, a short interview with Prof Tate (doesn't say anything new about his research), and a short interview with the leader of a local support group. The theme...